She came home from China with a 1mm pulmonary artery! It is now 7mm.
She came home with some pretty damaged lungs and while they have a long way to go, they are healing little by little and they will one day be normal.
She came home with an under developed pulmonary valve and it has since been replaced with a donor valve (this is the one that has caused the RCA occlusion).
She came home with her Aorta and her Pulmonary Artery in each others places, and they have since been replanted in the right places.
She came home with a huge VSD (hole in the lower part of her heart) and it has since been patched. She has a pacemaker.
She is on Enalipril, Carvedilol, digoxin, lasix, asprin, and calcium magnesium.
Doc said that if we came home and we saw that she was not back to her best place of health and energy by the end of 2 weeks.... then there was a problem. No secret what the problem is now, it would be that something had to be done now about that Right Coronary Artery. They would only do something in an extreme emergency, life threatening. They would use a mamary artery.
The short and long-term outcome of surgery is not known and thus has largely been avoided.
The day we got out of the hospital was the start of something so amazing, so beautiful! I have been too busy just taking it all in to even get on the computer. But today I made sure that I got on because you are all the blessing behind the miracle. They prayer that made this happen. The love thats held us up. The body!
Ivy walked out of the hospital all the way to the car holding my 2 hands. She went right in her tower when we got home and just looked around and giggled. She crawled around, walked around with my hands held just for confidence. She could totally walk if she had the confidence, and she will have it soon. She never stops! She is happy! She is full of laughter and she is feisty again!! Woo hoo! But in a great way! And she is sweet and sensitive and so tender! She has a really gentle heart. When the baby next door in the hospital would cry she would hold a chip or cracker or whatever she was eating, towards the door! She likes to dominate her mama but she loves to share everything else. (except her stroller... don't anyone even touch it.. her carseat, her high chair, or her shoes :) There is not doubt that this new mix of meds and the larger pulmonary artery are working! We pray that those little vessels growing around her occlusion keep growing!!!
She wakes up smiling and goes to bed still smiling. She does not ever even act like she is tired. She just falls asleep when she is. Im telling you, she could probably make it all day without a nap!!
Here she is right now, I am typing away, she was crawling around and next thing you know
Early next week we head back to PCH to see Dr Pophal. I cannot wait until he sees her! Pin It