tag:blogger.com,1999:blog-8217696818361310354.post5636531689133966471..comments2023-05-30T01:51:25.784-07:00Comments on Loving life with Lexi & Ivy Joy: Hello Sunshine!!waiting4lexi@gmail.comhttp://www.blogger.com/profile/11756262451172179466noreply@blogger.comBlogger29125tag:blogger.com,1999:blog-8217696818361310354.post-60914734146989068612012-04-18T08:21:31.011-07:002012-04-18T08:21:31.011-07:00You are such a wonderful mama...and do not feel an...You are such a wonderful mama...and do not feel anything but pride in the way you stood up for your baby. You are speaking for one who cannot...standing in the gap for your baby girl! She looks so good!!!Galehttps://www.blogger.com/profile/11330278642812339572noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-33364056052310899242012-04-17T15:11:42.327-07:002012-04-17T15:11:42.327-07:00How wonderful your sweet baby girl is looking in t...How wonderful your sweet baby girl is looking in today's pictures!! What an awesome God we serve... Prayers continue for you all!!Dr. Kim... :)https://www.blogger.com/profile/11154671745786674735noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-24198152726601525142012-04-17T10:13:35.240-07:002012-04-17T10:13:35.240-07:00Everytime I see her eyes open, I want to jump up a...Everytime I see her eyes open, I want to jump up and down with excitment!!!<br />I'm so sorry Mary, I would be incredibly angry and frustrated as well. Someone mentioned reporting the nurse. I'm not normally someone who escalates things to management, but in this case I definitly would! Poor Ms. Ivy:(<br />Continued prayers!! Love, SarahLee and Sarah VanGrunsvenhttps://www.blogger.com/profile/02154322719993189125noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-55633358323956422062012-04-17T07:58:28.858-07:002012-04-17T07:58:28.858-07:00Oh joy is the Lord to keep coming back to your pag...Oh joy is the Lord to keep coming back to your page and see these photos of Ivy sitting up and with color in her face!! My heart sings! <br /><br />I totally understand this frustration. When Katie Grace's nose tube was offset and pushing up so hard on her nostril for a couple days, I kept trying to push it down and re-tape it myself, knowing it was causing her great discomfort as her nostril was getting so red and irritated. I finally got RT to change it and we both felt better. We had one particular nurse who was a bit short with her answers and like you said, a little older and maybe lost her joy, but our others were fantastic!Anniehttps://www.blogger.com/profile/11247274435874561314noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-76136172367622054822012-04-17T05:46:44.100-07:002012-04-17T05:46:44.100-07:00We continue to pray for Ivy! She looks so beautifu...We continue to pray for Ivy! She looks so beautiful! My heart broke for her, and you, reading about that sweet baby not being tended to properly. I am so sorry about that, and I pray she does not ever have to have that nurse again.<br />Continued prayers for Ivy Joy! We love her so!ashleyhttps://www.blogger.com/profile/10725642786823818983noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-50387154792122367262012-04-17T01:34:35.607-07:002012-04-17T01:34:35.607-07:00I work in hospital administration; I beg you to re...I work in hospital administration; I beg you to report the nurse. She is a danger to your child & others if her attitude is not right. You have every right to monitor those caring for your child and to advocate on Ivy's behalf for what is best for her. So glad to see her improving.Bebehttps://www.blogger.com/profile/03671060509677181382noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-88505606817503639942012-04-16T20:47:22.701-07:002012-04-16T20:47:22.701-07:00Those eyes. Oh my, those eyes. They are now fill...Those eyes. Oh my, those eyes. They are now filled with what looks like peace and contentment. It is like having watched Jesus breath life right back into her compared to some of the early post op days. Ditto what some other posters have said~there is nothing wrong with asking that nurse not be assigned to Ivy again. If you don't desire to file a formal complaint, you can definitely make an official request that she not be left to care for your angel. One day you will have to post video so we can hear her sweet voice and laughter.Paigehttps://www.blogger.com/profile/12597834390775789672noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-27305116761360898412012-04-16T20:29:19.019-07:002012-04-16T20:29:19.019-07:00Oh Mary, you are such a better person than I...God...Oh Mary, you are such a better person than I...God Bless you! :) That nurse would not have liked me one bit, that's for sure! No one should be working with children, especially under the circumstances in a children's hospital, that aren't loving, kind and sweet, no matter what their experience! :( I'm so thankful Ivy has had so many other wonderful nurses and RT's that obviously really love these sweet kids and what they do and are made to be there!!! :) We will pray you do not get that nurse again and continue to pray for Ivy's steady recovery! Big hugs and kisses for Ivy Joy from Atlanta!The Harlicka Familyhttps://www.blogger.com/profile/18377108342409282302noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-48948542750363369752012-04-16T20:08:46.320-07:002012-04-16T20:08:46.320-07:00You have every right to vent. Just vent away, tha...You have every right to vent. Just vent away, that is what we are all here for. We pray for you daily for strength and comfort. Just the best thing to check to see how sweet Ivy is doing and see her sitting up in bed and looking wonderful. So glad the therapist is there for you.Sonniehttps://www.blogger.com/profile/01494624140521156977noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-27812135206149953862012-04-16T19:29:36.334-07:002012-04-16T19:29:36.334-07:00Oh, and Ivy still has the sweetest, bubbliest, chu...Oh, and Ivy still has the sweetest, bubbliest, chunkiest, sweetest, chubby cheeks ever and I wish I could squeeze them (gently).Lucianahttps://www.blogger.com/profile/10949412485077616350noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-27897217022028695082012-04-16T19:28:24.885-07:002012-04-16T19:28:24.885-07:00Vent away girl. You are always so positive and swe...Vent away girl. You are always so positive and sweet even when you're venting. I'm glad sweet baby girl is being well taken care of by the therapists. And that she has her wonderful family looking after her and showering her with love every moment she is there. <br />xoLucianahttps://www.blogger.com/profile/10949412485077616350noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-22370632931786798722012-04-16T19:08:30.893-07:002012-04-16T19:08:30.893-07:00Mary, I am SO SO happy for you and for beautiful I...Mary, I am SO SO happy for you and for beautiful Ivy! Have been praying so hard for her, and I just cried to see her so alert and happy and WELL!!<br /><br />As for that nurse, GRRRRRR! I cannot imagine the heart that isn't moved by dealing with such special little kids!! How sad for her, really!<br /><br />Continued prayers for little Ivy Joy from the clan in NY!!<br /><br />JenniferJen Gallagherhttps://www.blogger.com/profile/16606232685713543337noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-5906130178802429222012-04-16T19:04:10.686-07:002012-04-16T19:04:10.686-07:00I'm not a violent person, BUT, if I lived near...I'm not a violent person, BUT, if I lived near where you are that nurse would regreat leaving Ivy sitting in a mess like that! <br /><br />If she has "lost her love of nursing" she needs to not be there!<br /><br />Still praying in Athens, ALJohn & Michellehttps://www.blogger.com/profile/03191455427687476083noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-43681219298163997782012-04-16T18:46:44.026-07:002012-04-16T18:46:44.026-07:00Ivy looks FABULOUS!!! Made me smile when I saw her...Ivy looks FABULOUS!!! Made me smile when I saw her face. Then your post made me very sad. As others have posted, PLEASE speak to the PICU supervisor AND ask for this nurse to NEVER care for sweet Ivy again. You are quite justified to do this and this nurse needs to be "written up" .. I'm an RN and I would have no qualms doing so. As for Ivy's swallowing issues: our Juls had swallowing issues after each of her open heart surgeries - the nerve that controls one side of the throat/vocal chords/swallowing muscles also runs right down past the heart - it can become inflamed or, worse case, permanently damaged. Juls used thickened fluids after both surgeries and regained her ability to swallow in weeks, for one, and months, for the other. Continuing to pray for Ivy and praise God for her progress! :)Mary and Johnhttps://www.blogger.com/profile/06810742183947549658noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-70569923078491822522012-04-16T18:46:18.039-07:002012-04-16T18:46:18.039-07:00mary,
i've been following your blog....i'v...mary,<br />i've been following your blog....i've been a neonatal open heart nurse for 30 years....i am angry that your sweet angel had to sleep in throw up....your right the nurse has LOST her love for the BEST job in the world....good for you for posting this and getting it off your chest ;)<br />our daughter emma lael (adopted sept. 2010) was born with tetrology of fallot, she's had two open heart surgeries and will have 2-3 more. she is 4.5 years old...kids are amazing and even after all these years of having the pleasure of caring for heart babies i continue to be in Awwww how great they recover and do post operative.<br /><br />praying for a quick recovery and a sweet home coming.<br /><br />god bless you guys<br />andreaandreahttps://www.blogger.com/profile/00412293560605981619noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-91514172500612898282012-04-16T18:07:45.318-07:002012-04-16T18:07:45.318-07:00Little Ivy Joy and your family are in my prayers e...Little Ivy Joy and your family are in my prayers each day. She seems like she is getting so much stronger as time goes on. What a precious baby, Our Dear Lord is truly watching over her. Blessings.nancyhttps://www.blogger.com/profile/00008019064199566754noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-56014607558000701012012-04-16T17:51:47.309-07:002012-04-16T17:51:47.309-07:00What an amazing journey to watch. Ivy has touched ...What an amazing journey to watch. Ivy has touched and blessed more people than she will ever know and because of her and you and your openess so many will forever be changed. I can't wait to see what GOD has in his plans for her! The SKY will be the limit for that special girl! Prayers going up for everyone!Angie - Kentuckynoreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-84137256704249958612012-04-16T17:51:02.749-07:002012-04-16T17:51:02.749-07:00How great that Ivy is finally recovering. Please ...How great that Ivy is finally recovering. Please make a formal complaint on the nurse. Her lapse with the diuretic could cause the death of a child and no one should be left to dry in their own vomit! Don't worry that she'll take it out on your daughter. In fact, I encourage you to let the nurse supervisor know that you no longer wish for this nurse to care for your daughter. The supervisor should be very glad that you care enough to take the time to let her know what happened since it all comes down on her head if something goes wrong. <br /><br />Please don't hesitate to vent on your own blog, especially about this kind of thing since it educates others whose children will face the same things.Khttps://www.blogger.com/profile/07033823622722768455noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-92099313376038172712012-04-16T16:57:39.051-07:002012-04-16T16:57:39.051-07:00Mary ... Little Ivy Joy is such and answer to pray...Mary ... Little Ivy Joy is such and answer to prayers. My girls and I pray for her daily! She looks so alert - I see that spunk in her eye!!Jessiehttps://www.blogger.com/profile/08942072093921572143noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-73497315308960910502012-04-16T16:50:59.889-07:002012-04-16T16:50:59.889-07:00Oh, hang in there! Dealing with burnt out nurses i...Oh, hang in there! Dealing with burnt out nurses is so hard. When my son was having his first cleft repair surgery at 5 months old, the nurse allowed his pain meds from surgery to lapse because she would have to go get them and only gave them to him after they ran out to the point where he was screaming bloody murder. When she finally decided to medicate him she actually said to me that, that she guessed she better to it before he ripped his face open because she didn't want to clean that mess.....Sad but true. So, really hang your doing a great job! I'm a future mom to my waiting China boy and I've been following Ivy's journey....praying for her everyday!Leslie Desjadonnoreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-2849747477554575162012-04-16T16:29:48.878-07:002012-04-16T16:29:48.878-07:00I wish her progressive healing. Peace!I wish her progressive healing. Peace!Nicolehttps://www.blogger.com/profile/16626907321350290247noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-31616637811540372712012-04-16T15:29:46.766-07:002012-04-16T15:29:46.766-07:00I'm so sorry, makes me sad too. when my past h...I'm so sorry, makes me sad too. when my past husband was in rehab we had alot of different things happen and I came away from that understanding that some people need to change careers, they just don't realize how hurtful it can be to those watching a loved one suffer. Praying for a sweeter nurse tomorrow:) Thank heavens for your RT!!<br />So very thankful Ivy is improving daily!!!!Paigehttps://www.blogger.com/profile/00514407039834477303noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-89338040769013899122012-04-16T15:22:38.891-07:002012-04-16T15:22:38.891-07:00Ok so maybe I am not as sweet as your other reader...Ok so maybe I am not as sweet as your other readers. Maybe I have spent too many months being the advocate for patients but it IS NOT all right. IT just isn't. <br /><br />This is your baby and she has gone through so much already in her short little life and this should not be happening. You don't have to be rude and nasty ( you would never be that way anyway) but you DO have to bring this to someones attention. <br /><br />So thankful for the wonderful RT.<br /><br />Yay Ivy you are amazing little one, truly amazing.dawnhttps://www.blogger.com/profile/10929152764990722808noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-1417088241410439052012-04-16T14:43:00.326-07:002012-04-16T14:43:00.326-07:00You are human and yes you should be mad about that...You are human and yes you should be mad about that incident. You are so modest.<br /><br />So thankful Ivy is doing wonderful. My daughter prays daily for your daughter, and I love that she's even starting to sing the song on your blog now. :) "Loved you for a thousand years..." That tells you how often I visit it!<br /><br />reading and praying.<br />Jillthe meaklimshttps://www.blogger.com/profile/11125408251393399758noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-90190919906483419022012-04-16T14:36:39.071-07:002012-04-16T14:36:39.071-07:00I would be so M-A-D at that nurse. Poor baby girl...I would be so M-A-D at that nurse. Poor baby girl!!! <br /><br />Still praying.Heather Nnoreply@blogger.com