tag:blogger.com,1999:blog-8217696818361310354.post9022802227028519811..comments2023-05-30T01:51:25.784-07:00Comments on Loving life with Lexi & Ivy Joy: 3 days of Sildenafil waiting4lexi@gmail.comhttp://www.blogger.com/profile/11756262451172179466noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-8217696818361310354.post-77955566225595995892012-08-24T22:28:05.985-07:002012-08-24T22:28:05.985-07:00Soo, I forgot to note I am Josie LiNi's mom. ...Soo, I forgot to note I am Josie LiNi's mom. Maybe I want your full list of second opinion hospitals! You know I am actively getting second opinions for Ms Josie right now.<br /><br />Blessings and prayers for Miss Ivy Joy.KHMhttps://www.blogger.com/profile/17327144575741255237noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-43906558775307135832012-08-24T15:39:28.073-07:002012-08-24T15:39:28.073-07:00I'm so happy to hear that you are being aggres...I'm so happy to hear that you are being aggressive in researching other doctors, treatments, etc... for your baby. I really feel for you about the calories intake situation. Do you have a Vitamix or other really fantastic blender? Does it help if your baby doesn't have to chew the food but can just swallow it, like purees vs. chunks? Is it the swallowing and having to hold the breath that makes eating so hard and tiring for her? Funny how people think losing weight is hard, but until you've had to fatten up a sick child, one can't imagine the definition of hard, can they?!Khttps://www.blogger.com/profile/07033823622722768455noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-67716204027524016062012-08-24T10:29:54.519-07:002012-08-24T10:29:54.519-07:00We are on vacation but I keep checking in!! So ha...We are on vacation but I keep checking in!! So happy to read your post today. And FYI, we are in NY but only 4 hours from Boston. If you end up there...I am coming for a visit!!!<br />Kathie and Sierra and the rest of the Hikade family who has become quite smitten with little Ivy!!!sierrasmomhttps://www.blogger.com/profile/07325423303969796040noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-91622485205068599332012-08-24T08:12:50.642-07:002012-08-24T08:12:50.642-07:00I <3 Ivy Joy! Praying she stays active and eats...I <3 Ivy Joy! Praying she stays active and eats like a champ for you!! Praying everyday for your baby girl!! ~NancyJessiehttps://www.blogger.com/profile/08942072093921572143noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-89510591142945849542012-08-24T08:07:06.254-07:002012-08-24T08:07:06.254-07:00What a dollbaby! We live in Tennessee but went to ...What a dollbaby! We live in Tennessee but went to CHOP (Philadelphia) to give birth to our daughter, Hutton, who was born with Tricuspid Atresia with pulmonary stenosis and a VSD AND complete heart block. She had many surgeries to repair her heart but at age three, her options had run out and she recieved a transplant last July. We too have dealt with failure to thrive. Happy to report that she is doing amazing now and is finally on the charts! All this to say, I pray that your sweet girl will have a successful surgery but if The Lord has a new heart in her future then it will be okay too. Stay strong with The Lord in front of you all. He feels the pain of his children and will take hold of you all.<br />God Bless,<br />Jill Johnson<br />www.caringbridge.org/visit/huttonjohnsonAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-12279668897089205942012-08-24T07:03:56.463-07:002012-08-24T07:03:56.463-07:00YEAH!! love that even it is for a moment your prin...YEAH!! love that even it is for a moment your princess is back full force.Yvettehttps://www.blogger.com/profile/02537572063174399378noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-7618961041640614512012-08-24T06:06:36.014-07:002012-08-24T06:06:36.014-07:00Good morning! I was so happy to read this post thi...Good morning! I was so happy to read this post this morning. I just wanted to let you know that I have been praying for Ivy Joy and believing and thanking God for her healing. Love, KimKimhttps://www.blogger.com/profile/02959414399910008191noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-33535219705454639702012-08-24T05:48:48.736-07:002012-08-24T05:48:48.736-07:00Oh how your heart sings when Ivy is given these mo...Oh how your heart sings when Ivy is given these moments. Thanks for the explanation on heart transplants. Didn't know they only lasted 10 years. Will continue to pray for healing.Carmenhttps://www.blogger.com/profile/05233289828463495092noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-84596463971335139582012-08-24T04:40:45.895-07:002012-08-24T04:40:45.895-07:00Sooooo thankful you are getting to see/enjoy this ...Sooooo thankful you are getting to see/enjoy this precious angel in her element! What a spunky little doll! Praying for many continued good days as you continue to make her plan. Madeline asks how Ivy is every single day!Paigehttps://www.blogger.com/profile/00514407039834477303noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-67092793262025626042012-08-24T04:06:10.305-07:002012-08-24T04:06:10.305-07:00Wow -- made my day to read this wonderful happy re...Wow -- made my day to read this wonderful happy report. What a sweetheart. Will continue to pray for Ivy and your family.<br /><br />janetJboohttps://www.blogger.com/profile/08885993111102447005noreply@blogger.comtag:blogger.com,1999:blog-8217696818361310354.post-84559337735569997102012-08-24T03:49:38.527-07:002012-08-24T03:49:38.527-07:00Yaaaaaaaaaaaaayyyyyyyyyy! I'm so happy for you...Yaaaaaaaaaaaaayyyyyyyyyy! I'm so happy for you, but overjoyed for precious "Iby Jellybean". She is having a ball. That is prayer answered right there. Of course, ultimately it is for her to be healed; but it's so exciting to know that this baby is having FUN and showing everyone how even more precious she is. Much love, hugs, prayers and well wishes to you all. Lucianahttps://www.blogger.com/profile/10949412485077616350noreply@blogger.com