Sunday, October 21, 2012

Ivy Joy Sunday Morning Update!!

Good Morning!  It's Diana here... I just received a text from Mary with the following update for "Team Ivy!"

I can't leave her side now.  But that's a good thing!  Just makes in nearly impossible to blog or update.  I have to hide my phone because phones are really not allowed bedside.

We had a busy night!  She was wide awake, eating chocolate kisses, drinking water, and I even got some sweet giggles.  Finally at about 12:30am she was ready for sleep.  I headed back to my room on the 5th floor and was just getting ready for bed myself when the nurse called me.  Ivy had thrown up and was asking for me.  I ran back to her room!  I was a sight for sore eyes in my Boston sweat pants, Team Ivy t-shirt, and GOLD ballet flats!!  Yep, they were the only shoes I had at the moment.  Not a fashion show here at Boston Children's!

Anyway, as we learned in April, Ivy's belly just does not tolerate the NG feeds.  She held down 8oz of water, 5 kisses, and some granola for about five hours.  But as soon as they started her NG feeds she vomited.  By 2am we had her cleaned up and settled and before long, sleeping again.  I went back to wash her beloved blankie that had been thrown up all over.  Why oh why did I not make her 2 of those blankies?  I actually ordered fabric from my laptop this morning at 4am and I am having it shipped to me at the hospital!  I will find a sewing machine to borrow too!!!!  Mom on a mission!  Look out!!

When I returned back to Ivy's room at 7:00am she had spiked a fever again.  I really think it is from the stress of getting sick, not having her blankie and just being scared.  She responded to Tylenol and has been fever free all morning.

Now on to the great news.  She is getting some of her lines out as I type.  We can then move her to 8 East until surgery Wednesday! That means she can play, and go for walks and EAT!!!  Our prayer request for today is that she can relax and be more herself for the next 3 days!  That she stays fever free.  That she eats and drinks.  And lastly that she can be the first surgery on Wednesday morning.  Because we know this tiny girl likes to eat and drink!!!!!

We love you all!
photo-28IVYJOY ~Mary

15 comments:

  1. Oh those perfect, pouty lips! Praying for my little Sweet Jellybean.

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  2. Always praying for your sweet little Ivy doll!
    Leslie and Julianna

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  3. Praying for sweet Ivy. She is
    the best dressed patient ever.
    She always looks so cute!

    Thanks for the update.
    Caroline, John and Hannah

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  4. Praying in PA, for sweet Ivy and your whole family. Love her little lips.

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  5. Praying for sweet Ivy and for you Mary. I hope the fever goes away and she can keep things down.

    Kim

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  6. Our entire family is praying daily for your daughter and family.

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  7. Thank you so much for thinking of "us" and updating the blog.
    Sending healing thoughts and positive vibes, lots of love and anything else that we can to you all.

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  8. Praying and Praying for sweetie pie IVYJOY!! and all of you as well-- bet its so wonderful to have her awake !! God Bless!! love and hugs,Cathy in Illinois!!

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  9. Oh that face, be still my heart! Praying for your tough as nails little sweetie!!!!!

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  10. Thanks for posting that sweet picture... Praying :-)

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  11. Continuing to pray for sweet little Ivy...

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  12. Thank you for keeping us updated. Praying that she feels better soon. Hugs.

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  13. Still praying hard, Mary. Ivy is going to come through this with flying colors. Too much love and prayers being sent her way for any other outcome!!! She must have needed this extra time before the surgery, like you said! This time has served its purpose.

    Beth in Cleveland

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  14. Praying for your little and sweet Ivy!

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