A quick update on our Super Baby!

So so so grateful that we have gotten to this point and have a stronger Ivy! So happy to report that Ivy's surgeon and cardiologist are very happy with Ivy's heart and it's function! So so grateful to our mighty God who made her and loves her!!

I will be honest with you, she just feels so miserable today. It's hard on a mommy heart!
You know that feeling, when your child looks at you with those eyes that say, why aren't you fixing this? 
She is sleeping it off today and my prayer is that she wakes up with the energy and zest that she showed me last night when she came off the ventilator. She was talking and moving all over and getting very mad when they told her she had to wait 4 hours for water! She was interacting with everyone, asking me to hold her, giving high fives and fist bumps to the nurses! Is she not just amazing?!? I seriously can not get over the magnitude of this baby girls strength and will!

Ivy came off the ventilator at around 6:30 last night. She was put on a high flow cannula and had good sats all night on it. She was tired and slept on and off from 6:30 till the wee hours! She has been drinking lots of water and while she does cough, the nurse said it just sounds like she is protecting her airway and not aspirating. I admit, it really makes me nervous when she does this. 

We tried to feed her all morning but she refused. I know she feels crumby because Ivy only refuses food when she doesn't feel well. I was able to hold her from 7 until 1pm. It was wonderful. She was diving in to my arms when she woke up and I will say, her personality and spirit are back to her normal self. 

At 1pm I laid her down to change her diaper and she fell asleep again. She has slept most of the day, waking only for a drink or to make sure I was still there holding her hand. 

She is getting aggressive chest P.T, her lungs sound very junky, she has a massive amount of phlegm hanging around. It hurts so bad to cough.... can you even imagine? 

She is still on the High flow tonight but the plan is to wean her to regular oxygen later tonight. She is not draining much in her 2 chest tubes (this is good) so they will be taking those out some time tomorrow. 

She is very very very puffy. I should probably add a few more very's. She feels heavy, her legs and arms and hands are even big. They are adding more diuretics but my mommy instinct doesn't see the swelling going down quick enough. It is still considered normal, being only 48 hours post op and being a 3rd open heart surgery in just a few weeks. My prayer is that we see it drastically improved by morning.

So, in order to move forward and get her ticket in to 8 east and out of ICU, here is what we need.

More fluid coming out than going in. 
Eat eat eat! She needs to be eating!
High flow off!
Good respirations, which will only happen if some of that junk in her chest gets coughed up.

Thank you for your prayers!!!
For your sweet children and sweet husbands who have been praying as well.
For the adorable cards and pictures and treasures in the mail!
For loving Ivy Joy!

This precious video is from adorable lil prayer warrior Vivienne!