Progress for Ivy

It will take leaving this hospital for our little bumblebee to really fly. And really feel safe.

 She watches the door, follows whoever walks in the room with ONE eye. Keeps her stone face on guard, and holds my hand.

She tolerates everything being done to her with no tears. 

Her doctors and nurses think she looks fantastic! Her mommy thinks she is fantastic!!

She is already gaining weight. Her low weight that she had dropped down to last week was 13 pounds! (at 2 1/2). That weight haunted me! But she is already up to 14 pounds now. I can already see it in her face. It had gotten so thin and sunk in. Don't get me wrong, She is far from where she needs to be, but she will get there fast now that she is well.

 She shuts down in the play room. I think the worry that something else will be happening soon just gets the best of her. 
So we take lots of walks, watch lots of Dora, allow her to eat all the time, and wait together.

Blood pressure med is working, they are monitoring her closely, trying to find a happy medium 

 Her LA pressure is still high. It will take her heart 3 months to get to its Full new function. 

 I keep falling asleep typing this and waking up to a jumble of letters lol! 

Her lungs still have fluid in them. She gets a chest x-ray in the morning to see if we need to take a more aggressive approach. 

She has damage to her vocal chords so we are thickening all fluids like we did after last surgery and she is not the least bit happy about that. She likes salty snack foods so she is always thirsty and now that she knows everything is thickened, she just flips her lip and gets big sad tears down her face! 

She will have another echo and pacemaker check in the next few days and then once the results are in from that, we can start discussing the idea of us going home and the plan, as to when.

To say she is doing amazing would just not be saying enough! She has blown the doctors and nurses away with her will to live, will to get better, and the speed that she has been moving since she woke up! And the chances of getting a fever and pneumonia when you are recovering from 2 back to back surgeries is HUGE! I know we are not home yet, but Ivy beat the odds on that one too!

I thank you all again for praying for our daughter. For diligently following along and caring enough to leave us messages and share the joy!