Ivy Update

For those of you who have not followed the Mission To a Million Page (you do not need to be on Facebook to find this, just google mission to a million, it is a public page)
Ivy underwent her heart catheterization at 1pm today. We were told yesterday that her heart and hypertension were so bad that we should be prepared for her to code, and come back up on ECMO. Their exact words! 
This took us completely by surprise and left us certain that they were just covering all their bases, based on fear. We were scared. Last night Bryan and I talked and prayed and then prayed some more. We both felt confident that they were wrong about Ivy and underestimate the strength and fight our girl has despite her poor little heart. We felt that moving Ivy by air ambulance, getting her settled and all tests redone, before someone else did this exploratory Cath was just not in her best interest. She has been here a week, asking to go home every day, crying for her family and her real life back. We were in a tough situation but just felt a sense of peace that we were doing the right thing. We were blessed with an amazing anesthesiologist. He just happens to be the father of one of the anesthesia fellows at Boston Children's Hospital. He called his son last night and of course, his son remembered little Ivy! He used the same anesthesia that he would have used going in to an open heart surgery of a very poor working heart. It was perfect. She had no problems whatsoever! They were most worried about anesthesia, her pressures are so high.... AND GOD SHOWED UP, and little Ivy fought and she is doing well!!!!
She got to her room about 4:20 and her ventilator came out at 7pm. She looks good!! 
The purpose of the Cath was to make sure she was even a candidate for a transplant. They used oxygen and nitric acid to see if her arteries would relax and they DID! This is so promising as it means that her PH can be more aggressively treated and she could get a heart and not need a lung if that is what it came down to. We have all the data needed to get the ball rolling now and Baby Girl has a fighting chance! She is so stinking amazing!!!! Our cardiologist told us to expect her to be very sick recovering from today and for it to take significant time to get her on a cocktail that will leave her feeling better and able to come home. My thoughts..... Watch out!!! Here Comes Super Ivy!

Ivy on Wednesday morning giving herself a checkup

Ivy last night just before bed

Ivy just before going in to the Cath

 Ivy tonight just before coming off the Ventilator

Praise God from whom all blessings flow 

James 1:17