Thank you!

Thank you to all of our friends around the world for the outpouring of love and prayers over these past few weeks for Ivy to be home for her Birthday!

She was!! 

 It was a magical day.. HOT, but magical and every bit of the perfect day I dreamt she would have on her miracle day! 

It is so hard to believe our little tiny dynamo is 3! 

I have lots of pictures to post from her special day and I will do so as soon as I can, but today, I wanted to fill you all in on our trip to Lucile Packard for Ivy's transplant consultation.

We met with every person one could imagine. Social workers, child life, nutritionists, doctors, nurses, and the transplant surgeon. She had test after test and was an absolute angel the entire time. We have been seeing a great change in her since starting some of these new heart failure drugs and can certainly tell that she feels so much better. We will continue increasing her dose and using oxygen 24/7 as a medicine for her hypertension. 

Anyway, this morning the transplant team all met to discuss Ivy's history and the path they believe is best for our daughter. And after much consideration they have decided to decline listing Ivy for a transplant. I know this sounds like grim news but Dr Kaufman assured me that this does not mean she will never be listed, it just means that they feel there is still hope for Ivy's heart to get a little better with time. They feel that with some bypass arteries growing around her coronary and some hopefully positive response to the oxygen, and new medications, Ivy's heart may still be able to give her a good quality of life. The right side of her heart has terrible function, but they believe it could just need more time. It has only been 4 months since her 5th open heart. They want to give it a full shot at recovering before they say it is absolutely incapable of sustaining life. I appreciate their optimism. I call it hope. I know that every part of Ivy's life and miracle holds true to Matthew 19:26

But Jesus looked at them and said, "with man this is impossible, but with God, all things are possible."

And so the plan is to wait and see. She will continue with her new meds and oxygen. She will have a heart Cath at Lucile Packard on August 4th. And if she stays stable up until then, and shows a trend for the better in her  heart Cath, then we will stay off the transplant list and with our faith of a mustard seed, wait with anticipation for God to continue sketching out the plan for Ivy joy. He no doubt loves this little girl bigger than anyone could ever comprehend. And while this story may not seem like much of a fairytale to most, we give thanks every day that we have the 2 sweetest little princesses in our lives because He trusted us! 

I don't know about you, but I think this is going to be the best mothers day weekend ever!!! 

Ivy's Birthday Carriage!

Worn out from the party and being comforted by her big sister.