Changes

The changes and progress in Ivy over the past 3 days has been that of weeks! She has us all completely awestruck at the way that she blooms, like the video image of a flower growing in fast motion. So beautiful to watch!! 

So here is where we stand with our little flower~

                   Ivy is pulling herself to standing position!!

She is taking steps with her hands held!

He legs are a tad wobbly, exactly what your would expect from someone who has been laying down for almost 4 weeks and has lost weight and nutrition.

She is happy!

She is drinking her thickened disgusting water (poor sweetie) and we will start soft foods tomorrow.

Her last chest tube was removed today!

                              She is off all drips and pumps!!



She is being weaned to room air tonight!!!!!! That means you might see her without a cannula by tomorrow! Yay, Goodbye mustache!!

She has made a friend here. The 5th floor is all CVPICU (all heart kids) Her friend is 20 months old and he is waiting for a heart. He has been here since January, so needless to say, the longest on this floor. Ivy gets second place for the longest stay currently. They are so cute together, we took a couple walks together today and they pass each other their toys and jibber. Ivy blows kisses to every one we pass as we cruise down the halls.



I am taking my CPR class tomorrow and getting my NG tube insertion training. I am reading about the meds we are taking home. They don't start these things until you are getting close to going HOME!!! HOME!!! Thats right!! We could be going home late next week!!!!


On top of tube feeds, Ivy will be on several meds when we go home. 


Vasotec. This helps the blood vessels relax so the heart can pump blood more easily. It treats high blood pressure.


Asprin. Thins the blood.


Lasix. A diuretic. When extra water is taken out of the body, the heart does not have to work so hard.


Calcium. Diuretics and vasotec will deplete the body of calcium.


These are the ones I have been educated on so far. It is so exciting to think about Ivy being this close to finished here!! So amazing!!!!!


We are abundantly grateful for those of you who continue to pray. Thank you. I realize we are not home yet, but we are grateful for the prayers that continue to encourage us to take it one day at a time!