Hello Sunshine!!

Just thought I'd post early today since Little Miss is napping!

She had physical, occupational, and speech therapy today! She will continue with it every day! YAY! 

I'm jumping for joy with all the progress baby girl is making!!

Today she stood with help.

She colored a beautiful picture !

She drank from a straw. She choked, it seems to go down the wrong pipe. Her speech therapist added thickener to the water. It still caused her to cough a wee bit. 

Later today they are going to try again while watching with an ultra sound. This way they can see exactly where the water is going and if she is just perhaps still not healed enough to be drinking.

Foot notes from mommy: Kinda negative but I need to vent a little and then move on...

When I walked in to Ivy's room this morning she was sitting in vomit...  Her little shirt was off and she was sitting up by herself in her bed and the sheets were soiled with formula and her face was crusty white and her chest and neck and hair full of crusted white stuff.

I asked the nurse if she had thrown up and she said no.... 

It was very dry... and her little shirt was soaking in a bucket of water on the sink. With white formula all over it?

The respiratory therapist came in a few minutes later. Have I shared how much I love all the RT's here??? I have had 6 until today, our new one today makes 7. Every one of them is MY FAVORITE!!!! And Ivy is sooo sweet to them which is not normal because kids do not like to get EZ paps and be suctioned through a tube down your nose. So they have very deep sweet spots for Little Ivy who nods her head yes when they ask if they can give her a treatment. 

Anyway, the RT asked me if Ivy had thrown up any more? Thrown up??? I told her that the nurse said she didn't know anything about it? RT said she had thrown up at 4 am so they did not do her 5 am EZ pap. The nurses meet and talk for a good 30 minutes before they change shifts. It was all in the notes she left her as well. In fact she read it from the other nurses notes during rounds. So my guess is that it happened again and the new nurse never noticed it. She just wasn't checking on her so she missed it. What makes me sad is that it was completely dry! The bed and everything. The stuff in her hair and on her body, completely dry. When the RT spoke with her about the episode from 4am she said she vaguely remembers it now? So RT tells me that her night nurse bathed her, changed her sheets and requested that they come back later for her EZpap so she could recover.  Todays nurse also did not remember to call for Ivy's diuretic. She was taken off the lasix drip and put on every 8 hours and then has one other. She was supposed to call the pharmacy about the other but she forgot :(

Ivy has not peed since 6pm yesterday. 18 hours!!

So while I was on my soap box I asked if someone could please rewire my baby's nose!! It is bleeding because they have her feeding tube lifted so high and her poor nostril is being cut and stretched by it. And this cannula?? Hello? This is an adult size cannula on her! The RT told me not to worry, she would do it all for me, not to even wait for the nurse. (we have had this nurse 3 times now :) She is very experienced... been nursing a really long time... and she has lost her love for it :(

It's very obvious when she talks to the nurses about her other patient, using potty talk to describe how mad the child gets when they change her lines and such. She made my niece cry last week, my niece was with Ivy while I was out of the room and she told my niece that she didn't need to stay in the room, that the baby would be better off if she left :( Ya, she's really not a sweetie, bummer!! But we try shower her with sweetness in hopes that she is reminded of how rewarding and fun it is to be a nurse at a children's hospital. She is, after all a huge part of these kids life right now. 

Any way, ~my favorite~ Respiratory Therapist got Ivy a newborn cannula (PERFECT FIT), moved the feeding tube to the other nostril and taped things so that her nostril and is not being hurt in any way! I feel so much better now!!! See, I'm human... I complained today. 

Now back to my awesome little champ who happens to have been moved in to a crib because she is getting stronger every day and might just jump out of that big bed they had her in. I much prefer the bed... I can't get in her crib. But her nurse said even though we are always here, the second someone takes their eyes off her she would be climbing out of her bed... lol

Thankful for this day!! That Bryan or I are able to be here every day! That God is with her every second and he is SHINING!!!!!!!!!!!