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Showing posts with label healing. Show all posts
Showing posts with label healing. Show all posts

Tuesday, January 21, 2014

sick and sleepy

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I am posting tons of photos from January here. Ivy Joy has been SO sick for the past 9 days. Both girls had flu shots but unfortunately Miss Ivy still got the flu. She had her mama very scared this past week.  We had about 6 days of non stop sleep, opening her eyes for a few minutes to get a drink and then back to sleep she went. She was put on breathing treatments, steroids, and antibiotics but still, 9 days later she is a long way from better. She is finally awake but still has zero activity and a cough that goes on and on. Very very wheezy. But she is home and we are amazed that she is able to fight something as bad as this. Amazed. She told Lexi today that she is going to be sick for 6 more years so she needs to find a new friend to play with... Lexi was sobbing! I am not having any trouble getting her to drink, I have told her that she will need an IV if she can't drink all of the water in her water bottle. She drinks it right up now!
I am however having a very hard time getting her to eat. She has been laying around for so long and already has lost several pounds (she had no room to do that) and now we need to get her eating but she refuses. She is drinking some yogurt drinks (a huge surprise, this child drinks nothing other than water), and eating Cheeze itz crackers. Tomorrow I may have to tell my poor sweet girl about food that goes through an IV. Man, talk about the worst part of the job... maybe I will ask daddy to tell her!








The sisters


Ivy and Myah (Her buddy from Hangzhou) swinging together.










These statues look just like the statues in Guangzhou China so we had to take pictures! 














Checking out Myah's boo boo


              Exchanging Christmas gifts


                            Saying goodbye



                             Ice skating



Lexi loves Ice Skating!



The smallest skates just fell right off of Ivy's feet!





      So we let her check things out in her boots.

Until we got kicked off the ice. No boots allowed!




And this one closed the place down! She would have stayed the night!



 I took these just a day or two before Ivy got really sick. She was looking so full in the cheeks and feeling so much more solid. 



Look at all the beautiful thick hair she is getting! 


And this little beauty, oh what a trooper she has been as we have been home bound for what seems like forever! She is so patient and so easy going.




 And she loves the camera so I take advantage while I can. 



Our weather has been gorgeous and I simply can't wait to be outside with both girls again! Ivy has got to get well in order to keep with the plan and have this heart cath in February.







Our first trip to an Arabian Horse Ranch where the girls got to greet and feed and interact with 17 horses. 6 of them will be mommies in the next 2 months. We are hoping to make another trip back to see the new babies!! Lexi is currently crazy about horses. She told me today, "Mommy, I love horses, I just don't love the way that they smell. I love them so much that I try to forget the smell, it just takes me a while and makes my tummy hurt a little bit." Love my sweet girl!







Hoping and praying that the road to recovery is near and we will have our Ivy Girl back to her sweet spunky self soon!

         Her playmate misses her a whole lot!




For you shall go out with joy, and be led forth with peace: the mountains and the hills shall break forth before you into singing, and all the trees of the field shall clap their hands. Is 55:12

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Saturday, January 4, 2014

hip hip hooray!

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Today was Ivy's first day OFF Sildenofil!
Sildenofil is her medication for pulmonary hypertension. We need her off of this drug for a month before measuring her pressures again in her February heart catheterization. This is a HUGE step for her. This mama is nervous!!! I already feel like I see effects of her not being on it today and I could be completely phsyco but I'm just being honest. Her color looked different (bluish), her walk was cautious, her energy was low and appetite was small. I am holding on to hope that her body is adjusting and she will continue to thrive without it. None the less, my eyes are wide open and my mama antennas are pulled as high as they can go. We have an echo next week, labs the following and then NOTHING until we head to California in early February! 
The weather is gorgeous here! I think that's not the case for many of you so enjoy these photos of our girls enjoying their favorite Christmas gift... snow in the driveway, while all the grass is green in the background! We are far from snowed in here :)
















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Wednesday, October 23, 2013

Just so stinkin happy

Pin It Todays cardio appointment was the first in 7 weeks!! That isn't long for most, but for Ivy it was a big stretch! And boy was it great!!!
First things first, little peanut gained 600 grams! Thats 1.36 pounds! For little miss light weight, thats sensational!
And moving on to the heart side of things. Her doctor said he couldn't be more delighted with her progress! One step at a time Ivy Joy is beating the odds and fighting like a true warrior. She will have her pacemaker adjusted next month, another echo on the 21st of November, and then right after Christmas we will start the wean off of her pulmonary hypertension medication in preparation for her February Heart Cath in California at Lucile Packard Children's. 
Great things are on the horizon for our girl! I just know it!

I'm about to overload the blog with photos because I have not been keeping up well with posts :(
                    Ivy Joy in late September


Lexi's pre-school class picture in Early October
                                Same day




                 Ivy milking the cow at the pumpkin patch


Pumpkin Patch bounce pillow


Ivy loved the spider web

                                                                      Ditto :)



 This little girl just lights the room up with her smile and her giggle!

Excuse the pretzel in her mouth but the above is Ivy Joy in her Izzy Pirate hat with hair!



                         And here is Lexi in the same hat w/ hair


                                          Lexi with the pumpkins



The girls looking disappointed when daddy's team lost the Sunday game :(




Big sisters sweet doggie makes these girls happy!





On our way to see Sophia at Pirates and Princesses Live.



 Showing off how much she has grown! I reach the light switch on the chair mommy! Such a silly girl

                           And look how fast Ivy's hair is growing! 




 Both girls loved the pumpkin guts! We had lots of fun carving pumpkins and roasting the seeds!




 Giving thanks to God and embracing every single day. We missed all of these little privileges last year. School activities, Fall celebrations, costumes and pumpkins, pumpkin patches and hay rides, Lexi's forever family day, 2 birthdays, Thanksgiving, and I could go on but that's not my point. 
My point is that you do not realize how special and what a privilege it is to share these things together until you spend them alone in a hospital room across the country, 2800 miles from home. Last year I got through it only by the grace of God and my decision to choose Joy. Such a freeing and wonderfully comforting decision!
This year, joy is just all around me. And for that I am thankful!





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