A few steps back

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Good morning! I love how the Joy really does come in the morning! Not because something major happens overnight but because it's another day, another chance to live, to love, to do things right, to be a blessing, to breath.... Since Ivy is not allowed to wake up yet we are taking advantage of our bed at RMH and sleeping a few hours. When I walk in to her room in the morning~ OH THE JOY!!! My baby is here, she is alive, she is a living testimony to the Grace and incomprehensible Love of the Father!! She is my child, the one God knit in her mothers womb knowing all along that it would be me who would get the gift of being her forever mommy!!! Joy!! What a perfect middle name for my tiny little bundle of joy! 
I'm so sorry that my update was not quick to come. Yesterday was an unpredictable day. Most of the time I had my phone and computer somewhere I wasn't. But here we are, a new day.
Yesterday I was fortunate to sit in during rounds again. Met with her doctor who told me they would let her rest before doing anything else and that he was not planning on doing a heart Cath until Wednesday. A few hours later we were told that Ivy was being prepared to clamp the ECMO and see if she could hold her own. It happened around noon, it was too soon, her body was NOT ready. So back on ECMO she went. Around 2 they took her for another Heart Cath. You know, the one they said they didn't want to do until Wednesday ha! So I guess she had rested enough and they changed their minds.... 
The doctor was just concerned as to why Ivy had such high pressures and he and Dr Pophal both had time so off they went with her. At 9pm, 9!!! They brought her back to her room!! We spoke to her doctors, they said they put a stint in her pulmonary valve in hopes of it relieving some of the pressures. It did help her lung. Remember, the pulmonary artery and aorta are on different sides now. They are used to doing different amounts of work. And her body has never seen this much blood pumping nor sats of 100 much less even 70! So while these problems she is having are scary and even to her doctors, unexpected, it is not unusual that her little body would be having some issues with all this new anatomy. We continue to pray that she just needs rest and time to adjust and heal. She is using much more support from the ECMO today. And she is very swollen. She has some blood draining from her nose and chest this morning and with that and the swelling I was a little overwhelmed as I sat and took it all in. 
Our nurses are amazing, her team is amazing, we could not be in better hands!!!! She always has at least 3 people looking over her! 
Her body is currently 38*. She was 34* when she came out of the OR last night and it took them until 5am just to get her to 38*. They were all jumping up and down when she finally reached that milestone! 
So our prayer request today is that they give Ivy today to rest. All day! And that these super high pressures can be relieved by the stint they put in yesterday and medication if needed, but that it would require no more surgery. That her body would be accepting of it's new design and that her blood pressure would go up.
Thank you Team Ivy for ALL your prayers!!!! Thank you Lee and Sarah (and soon Madeline) for the sweetest bear and balloon! Thank you Amy for my visit yesterday, it was just what I needed and such a sweet time! I loved seeing Grace too!!! Thank you for the calls and texts and emails and comments, all of these are the food for my mama heart during the day!! 
Love to everyone!!!!!!! Pin It