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Sunday, January 6, 2013

January 6, 2013

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My darling Ivy. I sat here and watched you
as you slept in your hospital bed tonight 
for at least an hour straight. 
Confused by what is happening, 
worried beyond measure, 
without words to share with all the people that have been praying for you. And during 
this quiet time, I was reminded, 
God's love is being manifested 
in and through this time of suffering. 
And just as He promises you, 
God is going to take it away. 
We may not know when, but He 
is going to take it away and He 
is going to reward you in a way 
that will make all of your suffering 
seem as though it was not suffering. 
And He is going to give you everything 
you need for ever and ever—
millions and millions of years—
and you are going to be as happy 
as you can possibly be.

Mommy finds comfort in Revelation 21, 
"All crying and mourning and pain 
will be no more, for the former things 
have passed away." 
Mommy finds hope in your eyes, in your 
smile, in your heart!

As I watched you sleep tonight, 
I was thinking about how extra 
special you are. The way you talk, 
your little voice, 
your sweet nature 
and concern for everyone. 
You captivate everyone 
who meets you and you leave 
your handprints on their hearts. 
It reminded me how God builds amazing 
character, faith, love and depth out of suffering.  Some of the deepest, wisest, 
most loving, most patient, most 
ministering people I know, are 
the people who have walked the toughest journeys and suffered through 
the hardest times.
And so I am ending my post to you 
with a giant I LOVE YOU FOREVER! 
And my continued promise, 
to go to the ends of the earth 
for you and whatever your journey 
has in store. I will never 
leave your side, daddy and I 
will never leave your side, 
we love you to the depths 
of the universe and every 
moment with you is a moment 
we could never have had 
without our Ivy Joy! 


Friends our little peanut has been in the hospital since 

Thursday. We were watching her closely since the 

previous weekend as she was seeming to be a little 

puffy and had a bit of a cough. There was a lot 

of sleeping going on and it appeared that she had 

perhaps caught a little virus. She was eating and 

drinking and all of that, but she was tired and 

coughing a little. On Thursday morning she was 

sitting in her highchair and she kind of arched her back 

and stayed in that position. 

I pulled her out of her highchair and noticed she 

did not change her position and her eyes were looking 

to one side. I called her name over and over and she 

didn't respond. I told Cassidy to call 911, she was 

having a seizure. This was my first experience with 

a seizure and by the Grace of God it was very short, 

about 15 seconds total. 

While on the phone with the dispatcher she straightened 

right up and asked to go for a walk in her stroller! 

I still asked them to come out and they did. 

All was checked out, she looked normal, 

they left and we made calls to the cardiologist 

and her pediatrician. I suspected it was related 

to her electrolytes. It is not uncommon for kids 

on diuretics to be depleted of them, of potassium 

and sodium. Once we got in with the pediatrician 

it was decided to take Ivy straight to the ICU 

to be admitted and get some labs drawn. 

She did come back having low sodium so it is being 

suspected that this is what caused the little seizure. 

But in the mean time it was also suspected that 

this little cough that is getting progressively worse 

is being caused by blood backing up in to the lungs. 

And this would be really bad. And her echo revealed 

that her pressures are dangerously high. 

And something is going on with the right side 

of her heart as it has almost no squeeze... 

And so with great hesitation in typing this 

because it makes it harder to deny this reality I so 

want to wish is just a bad dream, 

Ivy will be having a Heart Catheterization on Monday 

to take a look around and see what exactly 

is going on with her heart. We know there is a 

problem but we don't know what. 

I asked the nurse tonight if there could be a problem 

with a mechanical valve, could you 

have regurge with a mechanical valve, 

I thought they were fool proof? She said yes, 

its not the norm, but it can happen. 

Seems to always be the case for my little love, 

not the norm but it can happen and then it does. 

It could also be her tricuspid valve. 

Both these valves are on the left and control 

the right side.. I don't know, Im going only off of 

small tidbits that are being thrown around 

for the time being. For those wondering, yes, 

I have been in very close 

communication with our Boston team 

since coming home and they are aware of everything 

that is going on with Ivy.  If we need to take 

next steps, those steps will indeed be taken

back in Boston.

So the facts I have are that she is very sick, 

she has a gray color.  Her face is very sunk 

in tonight but she still has significant 

swelling in her legs, feet, and belly. 

We know its the right side of her heart and 

we know her pressures are dangerously high. 

We know something is wrong and we 

know we need prayers without ceasing once again.  

Our little girl has been through enough, 

she needs a break, she is tired! She is exhausted! 

Please share our request. Please ask others to pray. 

On Blogs, Facebook, twitter, instagram, 

prayer circles, who ever you feel led to share it with! 

Please please please, storm the 

gates of heaven on Ivy's behalf, that she would be able to 

stop this constant suffering and 

pain and sorrow would be no more! 

Thank you
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94 comments:

Kelly said...

What a devastating news. My thoughts and prayers are with you.

All the love from the Netherlands

Laine said...

Praying in Alabama again!!!!!

Jennifer P said...

Today, I commit to praying for you, Mary.

Karen said...

So sorry Ivy is going through this. I am sending you all hugs. We have not stopped praying for her. I have asked all my friends and family to keep Ivy in their prayers. If there is anything I can do from Boston, please let me know.

dajmommy said...

Praying for Ivy, as well as for your family. May God touch her little heart again and again.

Anonymous said...

Sending prayers for another amazing recovery. She can do it! xoxo jordon

isandre said...

nous vous envoyons nos prieres de France
isa gwenaelle-anne et ellioth

Courtney said...

Sending prayers your way. You have come so far. Please continue to update her condition.

Keisha said...

:( sending up prayers......

Wendy said...

Praying now and always for her!

connie said...

Prayers going up in Oklahoma, and I'm spreading the word to pray for your precious Little Peanut who is so very brave!

alexa said...

I can't believe this. I'm so sorry for Ivy, and I will be praying again and again with all my family.
Alexa from France

Marianne said...

Praying, praying,praying

Leah Mei said...

Praying in Florida.....

anne said...

I am so sorry to hear this....praying here in Virginia for beautiful Ivy.

xoxo
annie

Anonymous said...

Oh Mary. Prayers being sent your way. Prayers for the heart cath to find the problem and that it is very easy to fix. Prayers for Ivy's strength and fight. Prayers for the med team for wisdom and expertise. Prayers for you and your family for comfort. Prayers for Ivy's heart to find its way with all f the changes and find its own life supplying rhythm.

Paige said...

oh Mary my heart is heavy for you and your family and especially our Ivy Joy. We have been praying for Ivy and will continue and pray specifically as well. I will post to fb and my blog now. Hugs and all our love to you and your family!!!

Anonymous said...

Praying for your sweet girl, and for all of you.

Deb

Colleen said...

Prayers fro SC.

Amy said...

Praying for precious Ivy from TN...

Anonymous said...

Praying for Ivy and her entire family.

templehome said...

i will pray!

Holly said...

God loves Ivy and Mary so very much!!! We all are praying for Ivy nonstop here. Ivy Joy, please dont give up! We love you and your family very much! Praying big!!!! Holly

Lisa said...

Oh, Mary...Yes, we will storm the Heavens with prayer. So sorry to hear about Ivy's turn for the worse. I can only say that your tribute to Ivy is just filled with the Grace and beauty of our Lord. It just made me smile despite the circumstances you are being faced with right now, to read your faith-filled words. Much love to all of you.

likeschocolate said...

As a heart mommy, I can feel your pain. I pray that Heavenly Father will wrap his arms around you, your family and most importantly Ivy. I will pray te team of doctors find what is wrong with her and be able to fix the problem. Hugs from our family to yours. Kelleyn

Lynilu said...

I'm adding my prayers to the chorus.

Your Mom's friend, Lyn

Isabelle et Ella said...

Prayers from Montreal, Canada

Anonymous said...

Praying in Alberta, Canada for your little peanut and for healing, and peace, from the Lord.

Vista said...

Praying for precious Ivy Joy, one of God's dear children, and for her family, her doctors/caregivers, and all who love her. In God's precious name, may His will be done in Ivy's life. Amen.

Jami said...

Praying in Nebraska!!!

Harlow Family said...

Prayers being sent your way

Annette Duty said...

Mary - I write this with tears in my eyes as I cannot imagine how exhausted all of you must be. We thought Ivy was just on her way to be all better and just grow and be a toddler. I pray to God that this is a minor setback and the tests will show exactly what to fix. While I know you're a strong person and very strong in your faith I still can only imagine your heart is sad for your little girl to have to be back in the hospital. We appreciate your updates and we'll keep on praying very hard for Ivy Joy. Ivy has so much life ahead of her and I pray that God will heal her so she can begin enjoying it again. God Bless each of you! Annette, Alexandria, and John

Even Miracles said...

Our love and prayers are with ivy and you all as always.
My she be no longer in pain and sick and may His love and light shine upon you all.
May healing prevail and no more pain and suffering for Ivy

Ladyblog said...

We have never stopped praying for sweet Ivy Joy....my girls got a prayer journal for Christmas and her name was the first in it! Praying for your entire family, doctors, and IVY JOY! I'm so sorry she has experienced so many setbacks. I cannot even begin to imagine how you all must feel.
~Rebecca in FL

Stacia said...

My prayers are with Ivy and your entire family.
Your post was such a great reminder of God's eternal love!

kim647 said...

My prayers are with you all. may God lift her up and heal her.

Erin said...

Prayers for your little one!

DiJo said...

PRAYING in MSP!!!!!!!!!

And holding tight to God's faithfulness and love for Ivy Joy!!!!

Hugs,
Di

Sharon said...

My heart just sank when I read this. Poor Ivy. I will be praying Mary most fervently that your little peanut is on the mend soon. {{{hugs}}}

Tera said...

I am so so sad to hear this. I can feel the extreme love and dispair you feel for your daughter. It is heartbreaking to know she is suffering again. Praying for miracles!!!

Michelle said...

Sending prayers for precious Ivy and your family.

Yvette said...

Unending prayers fro Ivy and your family!

Stefanie said...

Oh my goodness, I am so so sorry to read this news. But thank the Lord that He knows exactly what sweet Ivy needs. Will be praying for healing for Ivy and wisdom for her doctors.

the meaklims said...

I'm so so sorry to read thise news. :(

Praying.

meg said...

oh, we are praying....

Mimi said...

I'm praying and asking the angels to help you all, especially little Ivy. came via Lisa Long road to China and Back.

betsy said...

Sending much love and healing thoughts to all of you...

bbmomof2boys said...

Lifting you and your family up in my prayers!

Hugs,
Carla

Sherri said...

Oh my i'm so sorry to hear about little Ivy's condition. I have been following you on facebook and blog. I just prayed to our Heavenly Father to keep her safe and watch over her family in the time of need. Prayers from Florida

Ashley said...

Praying!!

Karin said...

I am so sorry to read this news. PRAYING from Boston that your sweet baby will experience God's healing and that the doctors will know what to do. Praying for your family, too.

Lori said...

Praying for you, Miss Ivy and your family.

Ann said...

Love and fervent prayers from Ottawa, Ontario.

Anonymous said...

Praying for Ivy-- a lot more than usual!! Blessings,cathy in illinois!!

Preppy Pink Crocodile said...

Oh gosh- I am sobbing! Y'all all need a break and to just have some quiet, normal time. Sending up BIG prayers for Ivy's complete healing!!

KK

maggie k said...

Mary - We stand beside you in praying for Ivy. Much love Maggie K

Big Happy Family said...

We will pray for you Ivy. We love you.

Jboo said...

Praying for you all.

janet

Kathryn said...

Praying for precious Ivy!

Jessica said...

Praying in Florida again. sharing your story as well with my facebook and church family.

Luanne said...

praying in NY

Anonymous said...

Praying in Ohio

Anonymous said...

Praying, praying for Ivy Joy. ~Holly

the beatties said...

Sending our love and fervent prayers for your precious Ivy. May you all be enfolded in God's love.
Marilyn & Brian in Colchester, England

Anonymous said...

Praying feverishly and agreement with Gods word, by His stripes your precious Ivy is healed. Praying wisdom and the best medical care. Peace to your heart s. God will take care of Ivy. Love to you all.

Fannie said...

I was just checking out Lisa' s blog & she said that Ivy is in need of prayers... I am so sad that she must fight once again, but I pray with all my heart that God will help her through once again! That precious little peanut deserves a happy ending. Lots of prayers for all of you.Lord please heal little Ivy's heart. Bring healing to her.Provide comfort, strength, and wisdom to her parents as they continue to seek your counsel. Lastly,I pray for the doctors and surgeons as they attempt to once again fix this beautiful girl' s heart.Give them wisdom and guide them as only you can do. In Jesus name, amen.

Georgea's Mommy said...

Praying & spreading the request for prayers my beautiful friend!!

Love to Ivy and all of you,
Amy

Paula said...

Praying and sending hugs to Ivy Joy and her family.

Randi said...

Praying in Ohio.

Anonymous said...

So so so sorry. - Dale in Baltimore

Wendy said...

We will continue to pray for sweet Ivy. Sending lots of hugs & love your way!

Carmen said...

No words,just continued prayers. Hugs.

Carmen

Ro, Ro, sa, ta, and so said...

Was so saddened by the news. Will continue to pray for Ivy's complete healing and your family's strength to get through this. xo

Kristi said...

Oh Mary. I am so sorry. I kept meaning to contact you when we were in Arizona. I wish I would have known you were in the hospital. I will pray for your sweet girl.

Scott and Kim said...

Mary, we will be continuously praying for your precious Ivy and your entire family. Kim

Ana said...

Prayers for your sweet girl!

Aus said...

Prayers offered - I've ventured in through Georgea's blog - and I'll be around on a regular basis! There is nothing worse than waiting with a suffering child - holding y'all in our heart!

hugs - aus and co.

Anonymous said...

Praying from SC for Ivy Joy who has touched my heart-that our Lord touches her heart with healing blessings. May the heart cath go well. Waiting for good news.

Anonymous said...

Sending your family and Ivy continuous love and prayers.
Beth

Kelly said...

I'm here from Lisa's blog... Sending light and love your way. Peace be with you.

Kim said...

Praying in New Hampshire. Sending love, hugs, warmth, positive thoughts, positive energy to your sweet, little girl.

Kim said...

Praying in New Hampshire. Sending love, hugs, thoughts, and positive energy to your sweet little girl.

rachel84 said...

Prayers from NJ for your precious little girl.

Anonymous said...

While I am not of your faith, I do have faith in G-D. Praying for beautiful Ivy and your family, from Texas.

Debbie Sauer said...

Prayers, always. Blessings

HULDAH said...

Father, I thank you for Ivy's life. I pray for healing and divine health.

Half Gaelic, Half Garlic! said...

Praying here in PA that the drs are able to heal your beautiful angel.

Thinking of you Mary~

xoxo,

Lisa

alexa said...

It's monday night here, in France? and I'm thinking of Ivy, praying that the problem has been found and that it's an easy one to fix. I pray for Ivy and for you, for your mama's heart.
Praying from France
xoxo
Alexa

Jane said...

Praying in Texas for you, precious Ivy, and for your family.

deborah said...

That poor little baby girl. And, you poor thing, having to deal with all this trauma. The good thing is that Ivy seems to have a tremendous will to LIVE. It's amazing for what she's been through. All I can say is, hang in there and keep doing what you've been doing. It seems to be working, so far. The prayers, of course, continue to go up for her and for strength for you. Can't wait to hear the good news that Ivy Joy is feeling much better! :)

Anonymous said...

Praying!!!
Joy

Michelle said...

Oh, how I am praying for sweet Ivy Joy and strength for her momma to help her through.

Anonymous said...

Still praying. Hoping the cath is an easy fix.
Beth

Catherine said...

My heart breaks for your sweet Ivy as I read this. Praying, praying, praying for your precious baby girl.

 
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