My darling Ivy. I sat here and watched you
as you slept in your hospital bed tonight
for at least an hour straight.
Confused by what is happening,
worried beyond measure,
without words to share with all the people that have been praying for you. And during
this quiet time, I was reminded,
God's love is being manifested
in and through this time of suffering.
And just as He promises you,
God is going to take it away.
We may not know when, but He
is going to take it away and He
is going to reward you in a way
that will make all of your suffering
seem as though it was not suffering.
And He is going to give you everything
you need for ever and ever—
millions and millions of years—
and you are going to be as happy
as you can possibly be.
Mommy finds comfort in Revelation 21,
"All crying and mourning and pain
will be no more, for the former things
have passed away."
Mommy finds hope in your eyes, in your
smile, in your heart!
As I watched you sleep tonight,
I was thinking about how extra
special you are. The way you talk,
your little voice,
your sweet nature
and concern for everyone.
You captivate everyone
who meets you and you leave
your handprints on their hearts.
It reminded me how God builds amazing
character, faith, love and depth out of suffering. Some of the deepest, wisest,
most loving, most patient, most
ministering people I know, are
the people who have walked the toughest journeys and suffered through
the hardest times.
And so I am ending my post to you
with a giant I LOVE YOU FOREVER!
And my continued promise,
to go to the ends of the earth
for you and whatever your journey
has in store. I will never
leave your side, daddy and I
will never leave your side,
we love you to the depths
of the universe and every
moment with you is a moment
we could never have had
without our Ivy Joy!
Friends our little peanut has been in the hospital since
Thursday. We were watching her closely since the
previous weekend as she was seeming to be a little
puffy and had a bit of a cough. There was a lot
of sleeping going on and it appeared that she had
perhaps caught a little virus. She was eating and
drinking and all of that, but she was tired and
coughing a little. On Thursday morning she was
sitting in her highchair and she kind of arched her back
and stayed in that position.
I pulled her out of her highchair and noticed she
did not change her position and her eyes were looking
to one side. I called her name over and over and she
didn't respond. I told Cassidy to call 911, she was
having a seizure. This was my first experience with
a seizure and by the Grace of God it was very short,
about 15 seconds total.
While on the phone with the dispatcher she straightened
right up and asked to go for a walk in her stroller!
I still asked them to come out and they did.
All was checked out, she looked normal,
they left and we made calls to the cardiologist
and her pediatrician. I suspected it was related
to her electrolytes. It is not uncommon for kids
on diuretics to be depleted of them, of potassium
and sodium. Once we got in with the pediatrician
it was decided to take Ivy straight to the ICU
to be admitted and get some labs drawn.
She did come back having low sodium so it is being
suspected that this is what caused the little seizure.
But in the mean time it was also suspected that
this little cough that is getting progressively worse
is being caused by blood backing up in to the lungs.
And this would be really bad. And her echo revealed
that her pressures are dangerously high.
And something is going on with the right side
of her heart as it has almost no squeeze...
And so with great hesitation in typing this
because it makes it harder to deny this reality I so
want to wish is just a bad dream,
Ivy will be having a Heart Catheterization on Monday
to take a look around and see what exactly
is going on with her heart. We know there is a
problem but we don't know what.
I asked the nurse tonight if there could be a problem
with a mechanical valve, could you
have regurge with a mechanical valve,
I thought they were fool proof? She said yes,
its not the norm, but it can happen.
Seems to always be the case for my little love,
not the norm but it can happen and then it does.
It could also be her tricuspid valve.
Both these valves are on the left and control
the right side.. I don't know, Im going only off of
small tidbits that are being thrown around
for the time being. For those wondering, yes,
I have been in very close
communication with our Boston team
since coming home and they are aware of everything
that is going on with Ivy. If we need to take
next steps, those steps will indeed be taken
back in Boston.
So the facts I have are that she is very sick,
she has a gray color. Her face is very sunk
in tonight but she still has significant
swelling in her legs, feet, and belly.
We know its the right side of her heart and
we know her pressures are dangerously high.
We know something is wrong and we
know we need prayers without ceasing once again.
Our little girl has been through enough,
she needs a break, she is tired! She is exhausted!
Please share our request. Please ask others to pray.
On Blogs, Facebook, twitter, instagram,
prayer circles, who ever you feel led to share it with!
Please please please, storm the
gates of heaven on Ivy's behalf, that she would be able to
pain and sorrow would be no more!
Thank you
94 comments:
What a devastating news. My thoughts and prayers are with you.
All the love from the Netherlands
Praying in Alabama again!!!!!
Today, I commit to praying for you, Mary.
So sorry Ivy is going through this. I am sending you all hugs. We have not stopped praying for her. I have asked all my friends and family to keep Ivy in their prayers. If there is anything I can do from Boston, please let me know.
Praying for Ivy, as well as for your family. May God touch her little heart again and again.
Sending prayers for another amazing recovery. She can do it! xoxo jordon
nous vous envoyons nos prieres de France
isa gwenaelle-anne et ellioth
Sending prayers your way. You have come so far. Please continue to update her condition.
:( sending up prayers......
Praying now and always for her!
Prayers going up in Oklahoma, and I'm spreading the word to pray for your precious Little Peanut who is so very brave!
I can't believe this. I'm so sorry for Ivy, and I will be praying again and again with all my family.
Alexa from France
Praying, praying,praying
Praying in Florida.....
I am so sorry to hear this....praying here in Virginia for beautiful Ivy.
xoxo
annie
Oh Mary. Prayers being sent your way. Prayers for the heart cath to find the problem and that it is very easy to fix. Prayers for Ivy's strength and fight. Prayers for the med team for wisdom and expertise. Prayers for you and your family for comfort. Prayers for Ivy's heart to find its way with all f the changes and find its own life supplying rhythm.
oh Mary my heart is heavy for you and your family and especially our Ivy Joy. We have been praying for Ivy and will continue and pray specifically as well. I will post to fb and my blog now. Hugs and all our love to you and your family!!!
Praying for your sweet girl, and for all of you.
Deb
Prayers fro SC.
Praying for precious Ivy from TN...
Praying for Ivy and her entire family.
i will pray!
God loves Ivy and Mary so very much!!! We all are praying for Ivy nonstop here. Ivy Joy, please dont give up! We love you and your family very much! Praying big!!!! Holly
Oh, Mary...Yes, we will storm the Heavens with prayer. So sorry to hear about Ivy's turn for the worse. I can only say that your tribute to Ivy is just filled with the Grace and beauty of our Lord. It just made me smile despite the circumstances you are being faced with right now, to read your faith-filled words. Much love to all of you.
As a heart mommy, I can feel your pain. I pray that Heavenly Father will wrap his arms around you, your family and most importantly Ivy. I will pray te team of doctors find what is wrong with her and be able to fix the problem. Hugs from our family to yours. Kelleyn
I'm adding my prayers to the chorus.
Your Mom's friend, Lyn
Prayers from Montreal, Canada
Praying in Alberta, Canada for your little peanut and for healing, and peace, from the Lord.
Praying for precious Ivy Joy, one of God's dear children, and for her family, her doctors/caregivers, and all who love her. In God's precious name, may His will be done in Ivy's life. Amen.
Praying in Nebraska!!!
Prayers being sent your way
Mary - I write this with tears in my eyes as I cannot imagine how exhausted all of you must be. We thought Ivy was just on her way to be all better and just grow and be a toddler. I pray to God that this is a minor setback and the tests will show exactly what to fix. While I know you're a strong person and very strong in your faith I still can only imagine your heart is sad for your little girl to have to be back in the hospital. We appreciate your updates and we'll keep on praying very hard for Ivy Joy. Ivy has so much life ahead of her and I pray that God will heal her so she can begin enjoying it again. God Bless each of you! Annette, Alexandria, and John
Our love and prayers are with ivy and you all as always.
My she be no longer in pain and sick and may His love and light shine upon you all.
May healing prevail and no more pain and suffering for Ivy
We have never stopped praying for sweet Ivy Joy....my girls got a prayer journal for Christmas and her name was the first in it! Praying for your entire family, doctors, and IVY JOY! I'm so sorry she has experienced so many setbacks. I cannot even begin to imagine how you all must feel.
~Rebecca in FL
My prayers are with Ivy and your entire family.
Your post was such a great reminder of God's eternal love!
My prayers are with you all. may God lift her up and heal her.
Prayers for your little one!
PRAYING in MSP!!!!!!!!!
And holding tight to God's faithfulness and love for Ivy Joy!!!!
Hugs,
Di
My heart just sank when I read this. Poor Ivy. I will be praying Mary most fervently that your little peanut is on the mend soon. {{{hugs}}}
I am so so sad to hear this. I can feel the extreme love and dispair you feel for your daughter. It is heartbreaking to know she is suffering again. Praying for miracles!!!
Sending prayers for precious Ivy and your family.
Unending prayers fro Ivy and your family!
Oh my goodness, I am so so sorry to read this news. But thank the Lord that He knows exactly what sweet Ivy needs. Will be praying for healing for Ivy and wisdom for her doctors.
I'm so so sorry to read thise news. :(
Praying.
oh, we are praying....
I'm praying and asking the angels to help you all, especially little Ivy. came via Lisa Long road to China and Back.
Sending much love and healing thoughts to all of you...
Lifting you and your family up in my prayers!
Hugs,
Carla
Oh my i'm so sorry to hear about little Ivy's condition. I have been following you on facebook and blog. I just prayed to our Heavenly Father to keep her safe and watch over her family in the time of need. Prayers from Florida
Praying!!
I am so sorry to read this news. PRAYING from Boston that your sweet baby will experience God's healing and that the doctors will know what to do. Praying for your family, too.
Praying for you, Miss Ivy and your family.
Love and fervent prayers from Ottawa, Ontario.
Praying for Ivy-- a lot more than usual!! Blessings,cathy in illinois!!
Oh gosh- I am sobbing! Y'all all need a break and to just have some quiet, normal time. Sending up BIG prayers for Ivy's complete healing!!
KK
Mary - We stand beside you in praying for Ivy. Much love Maggie K
We will pray for you Ivy. We love you.
Praying for you all.
janet
Praying for precious Ivy!
Praying in Florida again. sharing your story as well with my facebook and church family.
praying in NY
Praying in Ohio
Praying, praying for Ivy Joy. ~Holly
Sending our love and fervent prayers for your precious Ivy. May you all be enfolded in God's love.
Marilyn & Brian in Colchester, England
Praying feverishly and agreement with Gods word, by His stripes your precious Ivy is healed. Praying wisdom and the best medical care. Peace to your heart s. God will take care of Ivy. Love to you all.
I was just checking out Lisa' s blog & she said that Ivy is in need of prayers... I am so sad that she must fight once again, but I pray with all my heart that God will help her through once again! That precious little peanut deserves a happy ending. Lots of prayers for all of you.Lord please heal little Ivy's heart. Bring healing to her.Provide comfort, strength, and wisdom to her parents as they continue to seek your counsel. Lastly,I pray for the doctors and surgeons as they attempt to once again fix this beautiful girl' s heart.Give them wisdom and guide them as only you can do. In Jesus name, amen.
Praying & spreading the request for prayers my beautiful friend!!
Love to Ivy and all of you,
Amy
Praying and sending hugs to Ivy Joy and her family.
Praying in Ohio.
So so so sorry. - Dale in Baltimore
We will continue to pray for sweet Ivy. Sending lots of hugs & love your way!
No words,just continued prayers. Hugs.
Carmen
Was so saddened by the news. Will continue to pray for Ivy's complete healing and your family's strength to get through this. xo
Oh Mary. I am so sorry. I kept meaning to contact you when we were in Arizona. I wish I would have known you were in the hospital. I will pray for your sweet girl.
Mary, we will be continuously praying for your precious Ivy and your entire family. Kim
Prayers for your sweet girl!
Prayers offered - I've ventured in through Georgea's blog - and I'll be around on a regular basis! There is nothing worse than waiting with a suffering child - holding y'all in our heart!
hugs - aus and co.
Praying from SC for Ivy Joy who has touched my heart-that our Lord touches her heart with healing blessings. May the heart cath go well. Waiting for good news.
Sending your family and Ivy continuous love and prayers.
Beth
I'm here from Lisa's blog... Sending light and love your way. Peace be with you.
Praying in New Hampshire. Sending love, hugs, warmth, positive thoughts, positive energy to your sweet, little girl.
Praying in New Hampshire. Sending love, hugs, thoughts, and positive energy to your sweet little girl.
Prayers from NJ for your precious little girl.
While I am not of your faith, I do have faith in G-D. Praying for beautiful Ivy and your family, from Texas.
Prayers, always. Blessings
Father, I thank you for Ivy's life. I pray for healing and divine health.
Praying here in PA that the drs are able to heal your beautiful angel.
Thinking of you Mary~
xoxo,
Lisa
It's monday night here, in France? and I'm thinking of Ivy, praying that the problem has been found and that it's an easy one to fix. I pray for Ivy and for you, for your mama's heart.
Praying from France
xoxo
Alexa
Praying in Texas for you, precious Ivy, and for your family.
That poor little baby girl. And, you poor thing, having to deal with all this trauma. The good thing is that Ivy seems to have a tremendous will to LIVE. It's amazing for what she's been through. All I can say is, hang in there and keep doing what you've been doing. It seems to be working, so far. The prayers, of course, continue to go up for her and for strength for you. Can't wait to hear the good news that Ivy Joy is feeling much better! :)
Praying!!!
Joy
Oh, how I am praying for sweet Ivy Joy and strength for her momma to help her through.
Still praying. Hoping the cath is an easy fix.
Beth
My heart breaks for your sweet Ivy as I read this. Praying, praying, praying for your precious baby girl.
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