My darling Ivy. I sat here and watched you as you slept in your hospital bed tonight for at least an hour straight. Confused by what is happening, worried beyond measure, without words to share with all the people that have been praying for you. And during this quiet time, I was reminded, God's love is being manifested in and through this time of suffering. And just as He promises you, God is going to take it away. We may not know when, but He is going to take it away and He is going to reward you in a way that will make all of your suffering seem as though it was not suffering. And He is going to give you everything you need for ever and ever— millions and millions of years— and you are going to be as happy as you can possibly be. Mommy finds comfort in Revelation 21, "All crying and mourning and pain will be no more, for the former things have passed away." Mommy finds hope in your eyes, in your smile, in your heart! As I watched you sleep tonight, I was thinking about how extra special you are. The way you talk, your little voice, your sweet nature and concern for everyone. You captivate everyone who meets you and you leave your handprints on their hearts. It reminded me how God builds amazing character, faith, love and depth out of suffering. Some of the deepest, wisest, most loving, most patient, most ministering people I know, are the people who have walked the toughest journeys and suffered through the hardest times. And so I am ending my post to you with a giant I LOVE YOU FOREVER! And my continued promise, to go to the ends of the earth for you and whatever your journey has in store. I will never leave your side, daddy and I will never leave your side, we love you to the depths of the universe and every moment with you is a moment we could never have had without our Ivy Joy!
Friends our little peanut has been in the hospital since
Thursday. We were watching her closely since the
previous weekend as she was seeming to be a little
puffy and had a bit of a cough. There was a lot
of sleeping going on and it appeared that she had
perhaps caught a little virus. She was eating and
drinking and all of that, but she was tired and
coughing a little. On Thursday morning she was
sitting in her highchair and she kind of arched her back
and stayed in that position.
I pulled her out of her highchair and noticed she
did not change her position and her eyes were looking
to one side. I called her name over and over and she
didn't respond. I told Cassidy to call 911, she was
having a seizure. This was my first experience with
a seizure and by the Grace of God it was very short,
about 15 seconds total.
While on the phone with the dispatcher she straightened
right up and asked to go for a walk in her stroller!
I still asked them to come out and they did.
All was checked out, she looked normal,
they left and we made calls to the cardiologist
and her pediatrician. I suspected it was related
to her electrolytes. It is not uncommon for kids
on diuretics to be depleted of them, of potassium
and sodium. Once we got in with the pediatrician
it was decided to take Ivy straight to the ICU
to be admitted and get some labs drawn.
She did come back having low sodium so it is being
suspected that this is what caused the little seizure.
But in the mean time it was also suspected that
this little cough that is getting progressively worse
is being caused by blood backing up in to the lungs.
And this would be really bad. And her echo revealed
that her pressures are dangerously high.
And something is going on with the right side
of her heart as it has almost no squeeze...
And so with great hesitation in typing this
because it makes it harder to deny this reality I so
want to wish is just a bad dream,
Ivy will be having a Heart Catheterization on Monday
to take a look around and see what exactly
is going on with her heart. We know there is a
problem but we don't know what.
I asked the nurse tonight if there could be a problem
with a mechanical valve, could you
have regurge with a mechanical valve,
I thought they were fool proof? She said yes,
its not the norm, but it can happen.
Seems to always be the case for my little love,
not the norm but it can happen and then it does.
It could also be her tricuspid valve.
Both these valves are on the left and control
the right side.. I don't know, Im going only off of
small tidbits that are being thrown around
for the time being. For those wondering, yes,
I have been in very close
communication with our Boston team
since coming home and they are aware of everything
that is going on with Ivy. If we need to take
next steps, those steps will indeed be taken
back in Boston.
So the facts I have are that she is very sick,
she has a gray color. Her face is very sunk
in tonight but she still has significant
swelling in her legs, feet, and belly.
We know its the right side of her heart and
we know her pressures are dangerously high.
We know something is wrong and we
know we need prayers without ceasing once again.
Our little girl has been through enough,
she needs a break, she is tired! She is exhausted!
Please share our request. Please ask others to pray.
On Blogs, Facebook, twitter, instagram,
prayer circles, who ever you feel led to share it with!
Please please please, storm the
gates of heaven on Ivy's behalf, that she would be able to
stop this constant sufferingand pain and sorrow would be no more!
Born Dec 13, 2008 | Referral Nov 9, 2009 | Gotcha Day Nov 11, 2009
Born May 6, 2010 | Referral Aug 26, 2011 | Gotcha Day Feb 13, 2012
I'm an ordinary girl, married to an extraordinary guy. We have 6 incredible children including 2 adorable little girls from China. We love Jesus and choose to walk the road He paved in advance for us. We seek to be more like Him every day. We are far from there yet, but we are so grateful that he allows us to start fresh again every day.