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Thursday, April 18, 2013

Ivy Update

Pin It For those of you who have not followed the Mission To a Million Page (you do not need to be on Facebook to find this, just google mission to a million, it is a public page)
Ivy underwent her heart catheterization at 1pm today. We were told yesterday that her heart and hypertension were so bad that we should be prepared for her to code, and come back up on ECMO. Their exact words! 
This took us completely by surprise and left us certain that they were just covering all their bases, based on fear. We were scared. Last night Bryan and I talked and prayed and then prayed some more. We both felt confident that they were wrong about Ivy and underestimate the strength and fight our girl has despite her poor little heart. We felt that moving Ivy by air ambulance, getting her settled and all tests redone, before someone else did this exploratory Cath was just not in her best interest. She has been here a week, asking to go home every day, crying for her family and her real life back. We were in a tough situation but just felt a sense of peace that we were doing the right thing. We were blessed with an amazing anesthesiologist. He just happens to be the father of one of the anesthesia fellows at Boston Children's Hospital. He called his son last night and of course, his son remembered little Ivy! He used the same anesthesia that he would have used going in to an open heart surgery of a very poor working heart. It was perfect. She had no problems whatsoever! They were most worried about anesthesia, her pressures are so high.... AND GOD SHOWED UP, and little Ivy fought and she is doing well!!!!
She got to her room about 4:20 and her ventilator came out at 7pm. She looks good!! 
The purpose of the Cath was to make sure she was even a candidate for a transplant. They used oxygen and nitric acid to see if her arteries would relax and they DID! This is so promising as it means that her PH can be more aggressively treated and she could get a heart and not need a lung if that is what it came down to. We have all the data needed to get the ball rolling now and Baby Girl has a fighting chance! She is so stinking amazing!!!! Our cardiologist told us to expect her to be very sick recovering from today and for it to take significant time to get her on a cocktail that will leave her feeling better and able to come home. My thoughts..... Watch out!!! Here Comes Super Ivy!



Ivy on Wednesday morning giving herself a checkup


Ivy last night just before bed



Ivy just before going in to the Cath





 Ivy tonight just before coming off the Ventilator


Praise God from whom all blessings flow 
James 1:17


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49 comments:

DiJo said...

She's incredible!!! I love how God has given you the peace you need to advocate and protect your precious girl.. This is a wonderful update!!!!

Next note from me, will be from CHINA!!!!

YAY GOD!!!!!
Hugs,
Diana

John & Michelle said...

Praise GOD from Athens, AL! So very thankful!!!

KelleyO said...

I've been praying for sweet Ivy! She's an amazing little girl!

KelleyO said...

Yay Ivy! Sending lots of prayers your way.

More Kids 4 Me said...

Go Super Ivy, go!! Praise God from whom all blessings flow!! He has big plans for this little one!!

More Kids 4 Me said...

Go Super Ivy, go!! Praise God from whom all blessings flow! He has big plans for you, little one!

Karin said...

I am sooooo relieved! Praise God! What a precious miracle sweet Ivy is! Big hugs to all of you!

Suzette said...

Praise God for His hand of protection! So happy to hear this update! Believing God has big plans for your little girl!

Stacey said...

Wonderful, wonderful. I feel like I can breathe again. Hugs to all of you, especially Miss Amazing!

Stacey said...

Wonderful, wonderful. I feel like I can breathe again. Hugs to all of you, especially Miss Amazing!

Anonymous said...

Oh thank you Mary for this wonderful update. I don't have as much faith as you do, I was starting to worry....and feel so relieved for you, your family, and beautiful, sweet Ivy. You are all so amazing. XO from Dale and Sophie Changlu

Preppy Pink Crocodile said...

Ivy has been on my heart all week!

KK

Patty Zaldana said...

I just started following your page. Ivy is amazing! My daughter Sofia just turned two and has multiple heart defects including HLHS. It would be great if they could be friends. My thoughts and prayers are with beautiful Ivy and your family.

the meaklims said...

Oh Mary! She is an amazing girl. And our God, well He is simply incredible.

Jill

likeschocolate said...

She truly is a miracle! Yeah!

Betty said...

Amazingly awesome!

Anne said...

Praise God, indeed! Continuing to pray for Miss Ivy and all of your family.

Anne in Colorado

Anne said...

Praise God, indeed! Continued prayers for Ivy and all of your family.


Anne in Colorado

Anne said...

Praise God, indeed! Continued prayers for Ivy and all of your family.


Anne in Colorado

Anne said...

Praise God, indeed! Continued prayers for Ivy and all of your family.


Anne in Colorado

Anne said...

Praise God, indeed! Continued prayers for Ivy and all of your family.


Anne in Colorado

Kristy said...

Oh!!! Praise God!! I love how He makes himself known and shows up so big!! Praying for the next steps! The kids send their love... Charity and Josiah were praying for little Miss today!!

April Carpenter said...

Our God is amazing! And what a wonderful job He did making courageous Ivy. We are praying for you all!!!

jeanette said...

praising God with you! continued prayers!

April Carpenter said...

A broken heart and a contrite spirit, He has yet to deny. Oh how He loves us! Awesome! We are praying for you all!!!

sierrasmom said...

Awake early in NY to check on Ivy Joy! Thank you God for continuing to place your healing hand on this special girl! I slept in my Ivy joy tshirt!
Kathie

sierrasmom said...

Awake early in NY to check on Ivy Joy! Thank you God for continuing to place your healing hand on this special girl! I slept in my Ivy joy tshirt!
Kathie

dawn said...

Go Ivy Go. SHow them what you're made of. Sund ing hugs Mary.

Aus said...

Ivy - you are extremely cool - I'm one seriously impressed guy!! Prayers continue -

hugs - aus and co.

Fannie said...

There is nothing that Ivy and God can't do!!! Praying our girl makes a quick recovery from the cath and so thankful for the good news!! Our prayers continue as always Mary!!

Love from NYC,
Fannie

Lisa said...

PRAISE GOD!!!!!!!!!!!! BIG HUGS FROM FLORIDA!!!!!!!

Jo said...

Keeping you all in my thoughts and prayers ~ praise Him for all his amazing gifts!

Jo

Grandma Shelley said...

Praising God, and praying for your family. God does Amazing things... and you also have an amazing daughter! hugs....

Paige said...

Thank you for the update!! I prayed for her all day!!!

Wendy said...

Oh, such incredibly good news! Yay for Ivy. She is one strong and amazing little girl! Sending prayers and lots of love from Boston!

Shannon said...

Oh praise God!!!!!!!!!!!!! That is amazing! Still praying!

Anonymous said...

So happy and relieved to hear this update!!! ~Holly

Anonymous said...

Love Love Love this updte!!! We will continue to pray for Ivy and your family. You're right when you say - Watch out, Here comes Ivy! She is one special little girl! God is SO GOOD!!
~Kathy / San Tan Valley, AZ

Shay Ankerich said...

GO GOD!!!! Praise YOU from WHOM ALL blessings flow! SO thankful sweet Ivy is doing well!!! Love you Mary!!! XOXOXO

Tera said...

Tears!! Praise the Lord! What an amazing and miraculous little girl you have!! Praying for strength for all of you!

Anonymous said...

God give her Blessings and all of you!!Praising God LOUDLY for IVY JOY!!!Cathy in Illinois!!!!

Even Miracles said...

Praying for you all , may joy fill your hearts and may your prayers be answered.

Even Miracles said...

Holding to HOPE for Ivy Joy. May your prayers be answered and joy fill your hearts.

Big Happy Family said...

I am so amazed, have been thinking of you and praying for Ivy. So thankful that all went well. She is Super Ivy!!!

Paula said...

Here comes Super Ivy indeed! Wow! Hugs and prayers from Canada.

snekcip said...

Amazing HOW GOD IS WORKING THRU IVY JOY!!!

Catherine said...

Praise God! Laying Ivy at the feet of the Great Physician!

Liene said...

So glad she made it through the cath without any complications. That is awesome! Sending Ivy Joy hugs from one congenital heart patient to another. May God continue giving her the strength to keep fighting!

Danadjc1715 said...

I've only started reading this blog for less than a week and I can't possibly tell you how much your family has impacted my life. My kids and I have really been praying hard for you guys. Here I am at work and checking this website to see
If there is any news. Little ivy stays on my mind I just want you guys to be all happy and healthy! There clearly is so very much love in your family! I am wondering how everything's going over there for you guys, what a strong family you all are!

 
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