3 steps forward, 2 steps back

Pin It I walked in to a puffy girl at 5am. She could barely move her head to say hello to me. She ate a few bites of cereal, drank an ounce of milk, drank some water and threw it all up. I talked to the doctor and they agreed, she was not right. Her O2s were riding in the low 90's to mid 80's and not really maintaining the higher numbers after her easy pap treatments. Her heart rate was high and she was not peeing :(

It was right after rounds that they decided to put her back on the ventilator and possibly put in a new chest tube. They also discussed the possibility of pneumonia.
Fast forward a few hours to now. She is sleeping peacefully and has the ventilator down her throat. She did not need the chest tube, her lungs are very wet but they are not causing the problem. Her heart is causing the problem. They did an echo cardiogram  but the cardiologist is in surgery now so it has not been read yet. If it looks like they need more data to find the problem she will need another heart catheterization. That would make 3 in 10 days. My heart breaks for all she has had to endure and continues to endure. Here I was feeding her until midnight last night to get her strong and back at 5am this morning with my bowl of oatmeal, whole milk, peanut butter and yogurt smoothie just so she wouldn't need a tiny feeding tube. Never ever would I have guessed she would be having a ventilator put in her throat by noon! I so badly want to protect her. I want to tell her we are almost done. I want to take her home, healed! Yet we were warned, 3 steps forward, 2 steps back! Yesterday was  like an early Easter surprise. I would have never expected to spend the day holding Ivy, playing with toys, Seeing her sit up, feeding her!!!! I can look forward to the next time we have one of those days! Lots of those days!!! And they will come! Pin It