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Thursday, December 20, 2012

Is it crazy at your house???

Pin It This time of year is busy enough! Adding the fact that we lost so much time while away, came home with a still quite frail little girl, dance recitals, school programs, Christmas Parties, and all that fun stuff you can only do in December..... It's a bit crazy around here!!!

School is over for Lexi, Brady and Ivy and ends for Cassidy tomorrow. Yay!!! I LOVE having all my kids home!!! 

We had brunch with Santa today and Lexi was ear to ear smiles the entire time. This is a tradition we started way back with the Bigs. And I was so excited to continue it with the Littles!

 From the hot cocoa with all the whipping cream and pink and brown chocolate shavings you care to shovel in yourself, 

                                   to the puppet show 

                             and FootZ the clown 

                                      and magic show
                             and of course, her Buddy... Santa!!!! 

                      She was in all her glory! 

Ivy was a bit disappointed with most of it! She is so funny! The girl tells it like it is, no mistake!

She approved of the atmosphere and the highchair.

She enjoyed the puppet show, watching every part of it and laughing at all the funny parts! 

She was appalled that they not only had a clown in the ballroom, but that the clown was stationed right next to our table!!!! She was disappointed that they brought her pancakes to eat when she wanted eggs and mashed potatoes! (We were able to arrange that for her though :)

She couldn't believe we actually asked her again if she would like to take a picture with Santa? Uh..NO

Even in Daddy's arms, she wanted no part of sharing the stage with that jolly old guy! And boy was he Jolly! Lexi wanted to take him home with her!!! And I think he was pretty smitten with her too! 

Last week little Ivy ended up in the hospital. She was admitted to the PCICU. She woke up Sunday with a big ol belly. And by Monday morning it was, well, 21 inches of ginormous! 

After a bazillion tests they concluded that it was just a medication issue. She had been weaned off of one of her diuretics and clearly, she still needed it a great deal. Fluid had accumulated in her abdominal cavity and as soon as she was put back on that extra diuretic her belly began to shrink. We are so relieved!!! 
And a quick update on how she is doing overall. She is gaining weight still!! She has gotten much stronger but still has a long way to go. We have a great routine with her Coumadin and INR checks. Checking at home has been a breeze and she can almost check herself now. Seriously, I should get it on video it is adorable. She holds the tube and says catch the blood, come out blood! She wipes it up, and helps put it on to the INR machine. Such a big girl!
 Physical activity is our biggest challenge right now. Her doctors are certain that she is guarding herself knowing that she has always been in pain when physical so why mess up a good thing since she is finally feeling good. She is absolutely the most stubborn little bitty thing I have ever encountered when it comes to trying to get her moving. She will not do it unless it is her idea... and it's rarely an idea she cares to have. She sits on her throne and orders everyone around and she finds sitting in her highchair eating or riding in the Target shopping cart the greatest activity ever!

 We are moving to rehabilitative PT with a much more aggressive approach starting after the new year. In the mean time we just do what she allows, building trust, continuing the healing process, and we do see her strengthening up. She is full of smiles and joy and lots of spice!!! Our little firecracker indeed! Oh how we love her!!
Lots of pictures to follow from the past 2 weeks of Christmas Fun!!!
Wall-e the elf got in on the action for Lexi's Birthday! Can you find him?

 She wanted a JUMP party more than anything! On Tuesday, with Ivy still in the hospital, we were able to jump through hoops so that the show could go on! She so deserved this day!

 Lexi finally had enough hair to get some tapering done at her hair appointment a few days ago! 
Love her new little do!

 Now it's Ivys turn! She lost so much hair in Boston. I think with all that trauma, long period of time without nutrition and just being in bed all the time. It is just starting to fill back in on the top. 
                        What a difference 3 weeks makes!

     Pre School Christmas Program

Sorry for all the photos! I know my mom loves to see the girls and I love having this to look back at. I hope you all are having a beautiful joyous December!!! 

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jade said...

We love the photos too! Thank you!
Wishing you the most peaceful Christmas ever,
Greetings from Belgium

likeschocolate said...

The girls are so adorable! I love all their holiday clothes. Not just one holiday outfit but at least three I counted. The I live Santa is the best. Merry Christmas !

John G. said...

Thank you for sharing an update and of course we all love the photos. Thanks again for sharing. Have a Merry Christmas!

dawn said...

Did you really just apologise for all the photos? ha ha ha, I am still giggling, as if we mind seeing you beautiful daughters.
So glad Lexi had a spectacular birthday and that little miss is getting better by the day.

Julie said...

Don't stop with the photos, we love them! I can't believe how alike the littles are. Merry Christmas to you all.

Paige said...

just thrilled to see happy smiles all around!!! I'm so sorry you all had to go to the hospital, I know that has to be so scary!!!! Ivy is cracking me up with her bossiness, she and Janie would hit it off haha!!! Have a wonderful Christmas with all your kiddos at home!!!

Jboo said...

What a fabulous report! So happy to hear that all is going so well! Enjoy!

Merry Christmas!


Candy said...

Wishing you and your Family a Merry Christmas and a Very Happy, Healthy New Year! Love the pic of Ivy on the trampoline jumping.

About the hair...Rachel's hair took forever to grow. It finally started to grow at the end of Kindergarten and over the summer break.

Looking forward to seeing more adorable pictures when you have the time.

Enjoy the Holidays!

Laine said...

Praise the Lord!!!!!
And Merry Christmas! I know this Christmas will be one of your most precious EVER!
Our Kevin didn't move around and walk for weeks after his hospital stay...I remember praying so hard that he would just WANT TO WALK!!!!
He also lost hair too...I think you're is the trauma.
But now, over 2 years later, you would never know our little fella had such a hard time. He is a FIRECRACKER!
Hugs to all of yall!

Luciana said...

Thank you for this update with lots of photos :) Keep 'em coming.

Sarah Lynn said...

Thank you for taking the time to post, because I know you are very busy. The girls look wonderful. I am sure that Ivy's stubborness is a gift that helped get her where she is today, and when it is channeled, it will be a gift for the future. It's just a little problem until she learns when to apply it.

Di said...

Happy christmas to you all! I think it looks like you've managed (in between everything else) to make Lexi's birthday and the run up to Christmas very special. To a healthy and happy Christmas!

Anonymous said...

Love the pictures!! may they continue on!! Love seeing your family- wow ! that tummy of Ivy"s had to be scary to see -so very happy it is better! HOPING you all have a SIMPLY Wonderful Family Christmas Thank you Lord for ALL that YOU do for us and for LOVING us all!! Blessings,Happiness, Cathy in Illinois!!

Holly said...

Dear Mary,
Thank you for all the beautiful pictures and this post. It is so good to come home after a tired day and see your post. I am very happy that you all are enjoying your time together at home. Lexi and Ivy are so cute and the best dressed little girls!! I love all the pictures!! Wishing you and yours a very happy and Healthy Christmas. No more hospital trip Ivy :)

Holly Nguyen

Catherine said...

what a wonderful recap of the great things happening in your family! So thankful to see Ivy healthy and out with her family.

Merry Christmas!!

Paula said...

Love, love, love the photos! Ivy Joy looks better with each new post and Lexi's new hairdo is simply adorable. So thankful you are home enjoying this magical season with your family. That stubborn streak of Ivy's will eventually lead her in the right direction. And once she figures out exactly what her new and improved body can do....look out! ;-) Merry Christmas and best wishes for 2013!

Anonymous said...

I was relieved to hear that Ivy's medication was adjusted and that was the problem..great to hear that she is gaining weight also!! I continue to keep her in my prayers.
Merry Christmas!! ~Holly

Fannie said...

I LOVE all the photos!! It's great to see how beautifully your girls continue to do! I am amazed at how stubborn and strong that little Ivy is. Looks like 2013 is going to be a great year!!

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