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Wearing only a dress, shorties and a diaper... Miss Ivy weighed in at 20 pounds today!! She is 31 inches tall (or short). Her electrolytes were PERFECT! And her BNP Was at an all time low (For Ivy) of 379! Ivy has been as high as 20,000! So it is still high, still heart failure, but trending way way way way DOWN!!! Her heart likes it's new heart failure medications. She was not able to ramp up to her final dose of carvedilol because her blood pressure is very low right now due to all the meds. She is 70/40 tonight... We are watching her closely as she gave us quite the scare last night. 
We could not feel more content and overjoyed today. We have been having the best days, the best of times!! We got the ok to take trips with her, to let her be a kid and enjoy life!! Who could ask for more?
Tomorrow we have recital pictures for Little Miss Lexi! And Sunday Make a Wish is coming to help Ivy dream her biggest wish! Next week is recital!! The kids are all out of school and summer is here!!!!! Have a blessed weekend!

we rejoice in the hope of the glory of God. Not only so, but we also rejoice in our sufferings, because we know that suffering produces perseverance; perseverance, character; and character, hope. And hope does not disappoint us, because God has poured out his love into our hearts by the Holy Spirit, whom he has given us. (Romans 5:2-5) Pin It