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Monday, January 27, 2014

Getting Well!!!!!

Pin It Well I'm thrilled to be sharing that after being on edge for 2 weeks we are finally comfortable with Ivy's progress!! 







 We had a HARD HARD Thursday, Friday! When we went to the pediatrician Friday they were not at all happy with the lack of progress she was having. 
They advised we see the cardiologist right away as it appeared advanced heart failure had to be the cause of her continued cough and now what was becoming a big hard belly! 

I was scared and I was not ready to take the chance of her ending up stuck in the wrong hospital so I began packing our things in preparation for a trip to California where she could be seen at Lucile Packard. I called her cardiologist and we went through everything. Where this began, where it had progressed and where she was now. What we had tried, what worked and what was not working. Clearly, breathing treatments were not offering her any relief and she had finished the steroids and the antibiotics. He said that yes, this flu had been too much for her little heart and taking the sildenofil away at just about the same time... all a whole lot for her just recovering heart to handle. But in the mix of it, he really thought that a sinus infection had set in as well, and was the cause of her continuing cough. He told me to use my own judgement and if I felt that she needed to be back on the Sildenofil, to go ahead and do it. He had me call the pediatrician back and have her put Ivy on 20 days of a stronger antibiotic. I called. I spoke with the nurse practitioner we had seen that morning. She disagreed with my cardiologist... but said ok. She agreed to call in the prescription however she never did. I tried all weekend to pick it up but it was never called in. Friday afternoon, I decided it was time to start the Sildenofil. I was ready to do it a week ago, I just needed permission. I also gave her some rescue diuretics. We started seeing results right away!


This morning we saw the pulmonologist. He agreed that she needed her Sildenofil, her heart and lungs were not ready to handle all of this sickness and he also felt that she had sinusitis! We had 3 X-rays done to rule everything out and he called me an hour later to tell me she indeed did have raging sinusitis and he would be putting her on 20 days of a strong antibiotic! Oh yes, my cardiologist is a smart guy! I had Ivy in the pediatricians office how many times? Anyway, the only thing that matters now is that she is getting better every day. 
 By Sunday she was starting to stand and take a few steps and her spirits were way up! She hung out with one of her buddies while we went to church on Sunday. She made her first trip to Target in a very long time... Ivy is Target obsessed! By Sunday afternoon she had eaten more than her weight in veggies, eggs, shrimp, mushrooms, potatoes! Later that afternoon she surprised us all by asking to go for a little swim! She got in the pool and floated around for about 25 minutes. We were feeling very relieved and very confident that putting her back on Sildenofil was the right thing to do. Today she is walking, eating non stop and very happy! She has started her new antibiotic and we were told that this cough should be a thing of the past in 7-10 days. Her belly looks a lot better tonight and her face is no longer sunk in. I think her weight loss is nothing to worry about. The way she is eating she has probably already gained it all back! 










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27 comments:

Paige said...

yay,yay,yay!

Renate said...

So happy to hear the good news.She looks so good!

Debbie Sauer said...

So good to hear! Blessings

Preppy Pink Crocodile said...

That's so awesome!! Yay Ivy Joy!!

KK @ www.preppypinkcrocodile.com

Preppy Pink Crocodile said...

That's so awesome!! Yay Ivy Joy!!

KK @ www.preppypinkcrocodile.com

Angela said...

Fabulous!

Sharon said...

Thank the Lord! I have waited with bated breath for your updates and this was an awesome one. So thrilled to see your girl back!

sierrasmom said...

What a great way to start my morning!!! Go Ivy!!!

sierrasmom said...

What a great way to start my morning!!! Go Ivy!!!

Paula said...

Smart mom! Amazing cardiologist! I would have some words of wisdom for that nurse and the pediatrician. Hopefully they learn from this. Way to go, Ivy!!!

Catherine said...

Such wonderful news! Celebrating I h's progress with you and thanking Gos for answered prayers.

Karen said...

Such great news. I have been thinking of you and was going to send you a text today. I am glad I woke up to this post. You are the best momma!! Hugs and love to all. Karen

Carmen said...

Great news! Happy that you followed your instincts.

Sarah Lynn said...

What great news. Thanks for sharing it.

Sonnie said...

Best news I've heard all week!!! Wonderful, so so happy for Ivy Joy.
Prayers never stop for you precious family.

Sonnie said...

Wonderful!!! Best news I've heard in a week. Prayers never stop for you precious family.

Anonymous said...

Wonderful, go Ivy go!! :) The pictures are SO cute. ~Holly

Anonymous said...

so glad to hear little missy is so much better wow even out swimming Our God Is Great!! hugs, Cathy in Illinois!!

deborah said...

So glad she's doing better. Our youngest has been sick for over a month with a cough that just wouldn't go away, no matter what I gave her. Yesterday, she woke with a fever, so off to the Dr. we went and she was diagnosed with a sinus infection, too! She's on a week of antibiotics. Make sure Miss Ivy gets a good probiotic along with hers, ok? Very important to put back some friendly bacteria that will be killed off. Keep on improving Miss Ivy! :)

Anne B. said...

Ah blessed relief!!!! Ivy's smile is so precious!! Continued prayers for her continued healing!!

Betty said...

Yippee! She's back! This is awesome news...

dhm78 said...

Thank God! So happy you are seeing such improvement in your Treasure of a Daughter.

Take care,
hollym.:)

Kelleyn Rothaermel said...

So happy she is feeling better!

Anonymous said...

Joyously happy! Thank God your cardiologist knows her so well!! So happy to see Miss Ivy devouring life again!! Beth

Betty said...

So glad that Lexi didn't have to wait "6 years" to play with her sister!

Sophie said...

Praise God she's doing well! Sorry, but shame on that nurse practitioner for not following through! Moms instincts are never wrong!

Dana Richard said...

Wow! I loved reading that post!

 
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