We had a very busy day yesterday, Ivy had one more incident where she had the staff running circles around her. This time, she needed to be suctioned and could not exhale. So she started to de-sat, everything dropped like a rock again, and in the most calm fashion I have ever seen in my life, she was rescued!
Mommy has aged many many years this past week. And as I look at the window of our time here, Cath on the 17th that proved to be more than our little girls heart could handle, Open heart on the 19th and then again on the 21st. Today is the 30th..... I say that's not to shabby for our little hero. Considering where she was the day we arrived, what they found and what they repaired... You can not even imagine the level of my excitement, my whole families excitement, when we spoke with our cardiologist, surgeon yesterday.
Her heart looks soooooo good!!!!! It is not a perfect heart, Ivy's heart will always be special, but it is a heart that has hope!!!
It works!! It has been repaired correctly. All the mistakes they found... and they revealed another one yesterday as they rolled their eyes at each other and said thank you for bringing her here, have been addressed!!!! She is a living, breathing, oh so treasured miracle!!! They were so happy to see that the mitral valve regurgitation that they had hoped would show to be mild to moderate, was mild!!!! Very mild as of now!!!
So that brings me to this morning. We are going to attempt to get Ivy off the ventilator. They will do it during rounds (she will be the last patient) so they can all gather around her bed as they drop the pressure assistance and see how she does. When they stop her drip this morning she will wake up within 30 minutes and then the vent will be pulled. I don't know that I will be back to blog before tomorrow some time, so hang tight and remember her in your prayers.
Heres some love from the little candy corn pumpkin :)
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28 comments:
Great update, Mary! Will continue to pray for our little candy corn pumpkin. She is in the best of hands, and it sure sounds like she is on he mend:) Hugs from Florida!
Praying for your precious angel today as we do every day! I feel like I have aged in this hospital with Janie and it has been easy peasy, my heart hurts for all you are experiencing. You are a gift from God and chosen perfectly for your precious Ivy Joy. Your journey will touch so many people showing God's providence and love for us all! Hugs friend!!!!! Know I am praying for many specifics!!
Praying and praying this morning!!!!
Such a precious child. She is so very lucky to have your family to love on her and make sure that she is getting the very best of care. Continued strength. Looking forward to your update tomorrow.
So good to hear so many good news Mary. Praying everything goes well today.
Love that little miracle baby. Hope she has a great day today. Hugs!
Love the update of your special little blessing! Always in our thoughts and prayers continue your way.
So happy to hear this update this morning. Sweet Ivy sure is a miracle baby. Best of luck today and we look so forward to hearing how your day goes today...hugs to that sweet baby and to you Mary:)
Janice
Will be sending prayers to you and Ivy from TX. She is one blessed child and a beautiful one at that. Hope you are taking care of yourself too.
Oh Mary.
I know you are incredibly gracious but I hope you, or the wonderful team in Boston, let the doctors at PCH know just how wrong they got it. That information could prevent anyone else's baby from going through what Ivy has.
Ivy looks like a sweet candy corn angel!
So glad your baby is improving! She is definitely in the prayers of a lot of people!
Be careful not to mention any of her doctors from PCH (or even the name of the hospital) because the last thing you need is to be sued for slander!
Love your beautiful candy corn. Still praying in Washington.
We're so thankful for all the miracles! We're always praying for your little pumpkin!
Leslie and Julianna
"Oh so treasured miracle"...indeed!!!! It is awe inspiring the number of people that have fallen head- over- heals in love with you little Ivy! Praying a child and family through such a journey is such an honor and privilege. Thank you Mary and family for sharing your daughter with us in this way. Your unshakeable faith in God's hope and perfect plan for Ivy is such a beautiful testimony and encouragement to me and many others.
I will continue to pray pray pray and will not stop!
My kids (5 and 4 yes) ask about Ivy everyday, they pray
for her too!
Lots of love from MN,
Jess and Dustin, Davey, Lauren and Ava
Ps. Darling Ivy, someday you may look back at these pictures and if nothing else realize how sweet your mama is to make sure you always have a bow in your hair ;-) I love it!!!
No matter what you're going through...you look adorable!
AMAZING, you are all just amazing. I look at your candy corm pumpkin and I just smile.
How wonderful that she has such a caring team surrounding her and with such LOVE.
Dawn
Oh she is such a beautiful and sweet candy corn pumpkin.
Mary, it breaks my heart to know that all you went through the first time around was in vain and such a huge potential for disaster. It makes me sick to think that sweet little Jellybean was there to get fixed but instead came out more broken than before :( She is so strong and larger than life. There has to be a reason for all this. Definitely. God protects this baby and is using her for something huge.
Still praying and looking fwd to updates as soon as you can.
xoxo
She looks awesome! I can't help but shudder at the many mistakes made with Ivy. Thankful she is here and praying for you all! Looking forward to seeing her free!
She is a hero and a miracle and a precious child that God loves so much! She inspires so much in me! Love and prayers for your adorable little candy corn:)
The first thing I do each morning is check on our little pumpkin! Praying for an uneventful day for you all and again peace and calm as she wakes to her very strong Mama's smiling face.
Best,
Antinette Mama to Hadley
She's already looking better and is a darling candy corn princess! I hope that someday, somehow, someone can let the previous surgeons know what they did, and prevent another family having this experience. In the meantime - lots of prayers going up for your little peanut.
She looks so incredible for going through so much. These little ones usually look puffy and pale.. she looks fantastic!! Our prayers continue as Ivy extubates and heals. I talked to Dr Stock yesterday about Ivy breifly and he also, rolled his eyes a bit and was astounded.
Mary,she is so adorable as all here feel "God has something SPECIAL for this little miss" Hope all goes well with ventilator out !! Blessings,Cathy in Illinois!!
Oh my gosh.. I am just catching up.... So much action in that little life!!! I just continue to thank God for Boston's Medical Team!!!! Praying she is awake and staring at you with those gorgeous eyes as I type... She looks beyond Cute in her Candy Corn outfit!!! Beyond PRECIOUS is that Ivy JOY!!!!!!
I am home with Miss Sienna today... Her little "spleen-less" body was working overtime today to fight off something... But, we have it under control thanks to modern meds!!!!
Love ya,
Diana
Cutest little candy corn around!! Go Ivy!!
Praying bunches and can't wait for an update when she is awake!!
Just got power post-Sandy and look who I had to come check on; sweet little Ivy and her admirable Mommy! Hoping she came to as calmly as possible and will continue to pray for you guys!!
I,too, am so glad you came to Boston!!! Keeping Ivy and your whole family in my prayers! Thank you for the update.
Ivy's color looks AMAZING!!!! For the first time since I've been following your blog she doesn't look like a cardiac patient!!! She looks healthy!!! I am sooooo thankful you took her to Boston!! Great job with those mama instincts!! Continuing to pray for your sweet little miracle!
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