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Friday, November 16, 2012

A quick update on our Super Baby!

Pin It So so so grateful that we have gotten to this point and have a stronger Ivy! So happy to report that Ivy's surgeon and cardiologist are very happy with Ivy's heart and it's function! So so grateful to our mighty God who made her and loves her!!

I will be honest with you, she just feels so miserable today. It's hard on a mommy heart!
You know that feeling, when your child looks at you with those eyes that say, why aren't you fixing this? 
She is sleeping it off today and my prayer is that she wakes up with the energy and zest that she showed me last night when she came off the ventilator. She was talking and moving all over and getting very mad when they told her she had to wait 4 hours for water! She was interacting with everyone, asking me to hold her, giving high fives and fist bumps to the nurses! Is she not just amazing?!? I seriously can not get over the magnitude of this baby girls strength and will!

Ivy came off the ventilator at around 6:30 last night. She was put on a high flow cannula and had good sats all night on it. She was tired and slept on and off from 6:30 till the wee hours! She has been drinking lots of water and while she does cough, the nurse said it just sounds like she is protecting her airway and not aspirating. I admit, it really makes me nervous when she does this. 

We tried to feed her all morning but she refused. I know she feels crumby because Ivy only refuses food when she doesn't feel well. I was able to hold her from 7 until 1pm. It was wonderful. She was diving in to my arms when she woke up and I will say, her personality and spirit are back to her normal self. 

At 1pm I laid her down to change her diaper and she fell asleep again. She has slept most of the day, waking only for a drink or to make sure I was still there holding her hand. 

She is getting aggressive chest P.T, her lungs sound very junky, she has a massive amount of phlegm hanging around. It hurts so bad to cough.... can you even imagine? 

She is still on the High flow tonight but the plan is to wean her to regular oxygen later tonight. She is not draining much in her 2 chest tubes (this is good) so they will be taking those out some time tomorrow. 

She is very very very puffy. I should probably add a few more very's. She feels heavy, her legs and arms and hands are even big. They are adding more diuretics but my mommy instinct doesn't see the swelling going down quick enough. It is still considered normal, being only 48 hours post op and being a 3rd open heart surgery in just a few weeks. My prayer is that we see it drastically improved by morning.

So, in order to move forward and get her ticket in to 8 east and out of ICU, here is what we need.

More fluid coming out than going in. 
Eat eat eat! She needs to be eating!
High flow off!
Good respirations, which will only happen if some of that junk in her chest gets coughed up.

Thank you for your prayers!!!
For your sweet children and sweet husbands who have been praying as well.
For the adorable cards and pictures and treasures in the mail!
For loving Ivy Joy!





This precious video is from adorable lil prayer warrior Vivienne!







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40 comments:

Wendy said...

Yay! She's is Super Baby! We all do love her...and my kids and husband are praying, too! We will begin praying specifically for all of those things you have listed with some extra prayers for you as well. Ignore my post on facebook asking for an update. I checked back on the blog and found your post...and thank you for taking the time to do these updates! Hope tomorrow brings more great progress!!!! Sending you all our best!

Maggie said...

Thanks be to God! More progress. Praying for Ivy and for you.

Anonymous said...

So happy to have an update! Honestly ,I was getting worried!! God Bless Super Ivy! please get her feeling better ,get her to Eat!! Keep her in your care ,O Lord, heal this precious little one! Get her to drink!! Keep Blessing her and thank you so much that mommy gets to hold her and be near her!Help that fluid in her get out,so we have Ivy back to her normal size! we do love Ivy so much! Keeping all enveloped in prayer,Blessings,Cathy in illinois!!

Ladyblog said...

She is such a little hero! I'm so thankful for your update. PTL that she is doing so well and we will be praying for everything needed for her full recovery.

Paige said...

So thankful to hear she is doing so great. We are praying specificaly for all you have mentioned. Oh precious Ivy you have some kiddos tat adore you in our household:) we can't wait to see pics of you smiling again soon and getting ready to GO HOME!

sierrasmom said...

What encouraging news...thank you so much for updating..but everyone except me is asleep so the others will have to wait until morning! I will pray for everyone of your needs!,
Hugs
Kathie

Anonymous said...

Hang in there Ivy..we are all thinking about you 24/7....Gyll ( Gramma to Ryleigh) Xinyi.......

Holly said...

All of us are praying for Ivy. We know Ivy will get to go home by Thanksgiving!! Love and prayers as always...
Holly

Kim said...

So glad to read your update. What a super hero she is! Continuing to keep everyone lifted in prayer.

DiJo said...

Mighty Miracle Girl!!!! SHe is going to get there!!!! She did not go through 3 open hearts in Boston to hang back in the PICU for long... Praying tomorrow brings all sorts of good news!!! Thanks for the specifics Mary!!! Praying you home SOON!!!

Love,
Diana

jennifer said...

What a great report! Love that little fighter of yours!!

The Harlicka Family said...

Thank you Mary for the great update! I was getting worried w/ the "radio silence" and my hopes and prayers were true, mommy was getting to hold and love on her amazing girl!!! Praying for all you have requested and more for sweet Ivy and her amazing mama!!!
Much love!

Shay Ankerich said...

God bless you both tonight and will certainly be praying for IJ!!! Got my cute shirt today~ it went to Amelia at college and she brought it home to me! Can't wait to wear it tomorrow!!!!! Love you sweet friend!!!

Candy said...

So happy to see your update. Praying that tomorrow brings a Happier, Healthier Ivy Joy.

Karin said...

Soooo thankful to hear of the good progress she is making! What a fighter! I will pray for the things you mentioned and I hope she wakes up feeling better tomorrow. Coughing with a third heart surgery just makes my heart hurt in sympathy. I can't imagine... poor baby.

Fannie said...

Sooo glad to hear she's doing well!! That beautiful girl is such a little fighter! She just amazes us all!! Hoping the little princess eats and gets off the high flow. :)

Praying for you too Mary. You are an amazing Mommy! So glad Ivy is now leaning on her mommy.

Lots of love and prayers from NYC!

Lisa said...

Just got home this evening and SO relieved to hear such an AWESOME update. Been waiting all day for this great news:) Sleep tight!!! Hugs to Miss Ivy:)

the beatties said...

With our love and prayers for all that you ask for and much more.
God bless you both in Boston and your loved ones at home.

likeschocolate said...

I will pray she starts peeing all that out of her. One step closer!

Anonymous said...

Precious Ivy Joy, you are amazing! Prayers from Hong Kong!

alexa said...

So relieved to read that update, Ivy is such a hero ans so you are!
I'll pray God that everything Ivy needs is going well.
Hugs for a special little girl and her special and loving family

bytheriver said...

Thank you for your post. I was so worried about Ivy. Prayers for her speedy recovery and for feeling better and no more complications.

Yvette said...

You tell your baby girl I have been fighting VPN' s and wifi all day to check on her from here in China. Praying as always

Angie in Kentucky said...

How amazing is Ivy Joy? I stand in awe by this little miracle. You are a superstar in my mind as well. Being away from all of your other babies is hard and my family is wrapping our prayers and arms around you in Boston. Hopefully proving you a little bit of an extra push to get through this next week and home to your family where Ivy will flourish and grow. I can't wait to watch her. God has big plans for this sweet girl for sure!

3 Peanuts said...

Mary, It is unbeleivable how much sweet Ivy Joy has had to endure. May the Lord less and hold both of you in the palm of HIS hand. May you have plenty to be Thankful for this Thanksgiving week. All our love and prayers,
Kim

Erin said...

Ty for the update! I've been thinking about sweet Ivy Joy all day. I've put her picture on my blog, where everyone can pray for her.

Laine said...

Oh precious little Ivy, we will keep praying for you and your doctors and your sweet mama!!!!
God's grace and healing and mercy and joy abundant...

Jane Klingenberg said...

Sadie and I just prayed for precious ivy from our hospital room in Chicago.

I had written a long post but lost it.

Love from Jane and Sadie,

Big Happy Family said...

Praying for Ivy and for you Mary.

Courtney said...

First I want to say that your faith in God has led me to try and be a better Christian. I have never encountered anyone with as much faith in Him as you have and I find that extremely humbling. Thank you for that ;) Second, I have prayed for little Ivy more than I have prayed for anything or anyone in a very long time. With her strength and your faith there is no way this little girl will not do amazing things with her life. May God Bless you and your family and may he continue to give you all the strenghth that you need.
Courtney Barnett

Anonymous said...

Continuing to pray for your sweet baby girl .. I was so very relieved to hear of her good progress. Her strengh and spirit are so amazing. I hope she will be feeling more and more comfortable so very soon. ~Holly

April Carpenter said...

What a mighty God we serve! Amen! Praying for Ivy and her family!

Bridget said...

So thrilled to see miss Ivy off the vent, and glad to hear she's on the right track. Prayers for continued improvement!

Annette Duty said...

I must say we are praying so hard for her to get better super fast. I can only imagine how cruddy she must feel. Poor kiddo - she's been through too much. We want to send her a gift but I wonder if you will be home before it gets there - I think we'll just take the chance that it gets there in time for her to enjoy. God Bless both of you during such a difficult time. Soft hugs for both of you!
Annette

Lori said...

So happy for such wonderful news! She'll be tearing around that hospital and then your house before you know it! :-)

Kristi said...

Hi Mary,
I was up at 4 am this morning to catch a flight out of NJ to Costa Rica... So I am pretty tired but of course, not too tired to check in on sweet little Ivy!!!! Thinking of you guys down in Costa Rica.... Go Ivy go...keep on amazing us little angel!!

Monica said...

When I read your blog or pray for your family and Ivy, I ALWAYS see her sweet face looking at you with such complete love. She had only known you for a few short days....but God put her with her mother and she knew it from the heart.

Blessings to your family
Monica ...Jesse's mom..whom you gave a ticket to the zoo in China...:)

kim647 said...

Thrilled beyond words that Ivy is doing better. Prayers sent to her and your entire family. Hoping for a break out soon for you both to go home. Hugs.

alexa said...

Tonignt I'm so worried and I pray and pray that Ivy is feeling better and I'm waiting so hard for good news that I just can't go to sleep.
Keeping all enveloped in prayer.

dawn said...

Sending more hugs and hoping no news is great news.

 
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