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Sunday, November 4, 2012

Ivy Joy we love you!

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Sorry If you've been holding your breath for a post. Between the crazyness that has been going on with Ivy and the hotel having Internet problems, I was not able to post. I have a ton of emails, I haven't responded to because we can't use phones on the cardiac floor so please accept my apology! I hope I answer all your questions here tonight.
I'm posting tonight from my phone so no pictures just lots of info. I will put a couple on Facebook in case you need a quick peek at princess stink eye. 
So where are we? You know she woke up, she's been pretty low key and in a fog until today. Today her mind is as clear as glass and she is less sleepy. Yesterday we moved out of ICU!!!! Yep, hours after waking up!!!! She is off oxygen, getting bolus feeds at night only, eating 3 meals on her own. She has all chest tubes out. She has a picc line that mommy fought for her to get and sure enough her last IV went bad last night. She is sitting up for a good 10 minutes at a time before she complains of pain. She looks so fantastic!!!
The things we are working on are wet lungs. Very wet. Weakness. She has lost so much weight that she can't stand without quivering. So we are trying to get some weight on her with these extra feeds. Her blood pressure meds are still being tweaked a bit. Her pacemaker gets checked tomorrow. She is not turning her head to her right at all. She had a line there that was just taken out and we think its just very sore, but we have someone coming out to take a look and be sure it's not a pulled muscle or something. She gives everyone the stink eye, here in Boston they call it the hairy eyeball. Anyway, I think tonight she finally forgave me for all of this and she spent  the rest of the night in my arms. She took a longer time to go to sleep tonight, another great sign that she is feeling better 
 Her strength after having 3 open heart surgeries in 6 months, is going to be slow to come. She needs to gain weight, gain stamina and ultimately, she needs time to heal!!
Her chest is quite bowed out due to the 3 openings so close together. Her incision looks wicked fresh and frightening still but it is undressed already and doing fine. 
Outside of that, nothing!!!!! She is doing absolutely amazing!!!!! 
God's Miracle !
Thank you for continuing to hold Ivy up in prayer .
Mary

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31 comments:

Alison @ Notyetwhatweshallbe.wordpress.com said...

Yay, such good news! Glad she (and you!) seem to be doing so well!

Ladyblog said...

I'm so glad Ivy is doing so well and she continues to be in my thoughts and prayers! We will pray for her strength to build, her lungs to clear, and for her healing to continue!! Thank you for the update.

Amy said...

I was holding my breath . . . so glad to see such a great update. Continuing to pray for your sweet baby girl.

Di said...

I have been checking in all weekend and am so glad that she is doing so great. Hopefully the lungs will clear as she gets stronger.....way to go IVY!!!

Anonymous said...

THANK YOU' THANK YOU, THANK YOU!!!!

Luciana said...

Oh thank you Mary for an update. Praying for dry lungs.
xoxo

The Harlicka Family said...

Such wonderful news!! I can't wait to go check FB and see her sweet face! :) continued prayers for Ivy to get stronger with each day and for her complete healing! Prayers mama is getting the rest she needs!!
Much love!

Carmen said...

Praise God for the wonderful news. Thanks for updating us. Will continue to pray for the kinks and for her emotional healing.

Wendy said...

We are so thankful to hear such wonderful news about Ivy's progress! We will pray that she continues to make great progress in her recovery and hope that she soon feels better enough to play and smile again! She's one amazing little girl!!!!

John & Michelle said...

Piper (almost 3) and I continue to pray for Ivy's broken heart but will now add to that!!!! LOVE you all (((HUGS))) from Athens, AL

Candy said...

I'm so happy to hear that Ivy is doing so much better. I know it's going to be a long haul, but she's making progress. I look forward to seeing some pictures of your beautiful daughter. I will have to wait on those pictures on here, as I don't know your facebook name.

sierrasmom said...

Thank you Mary...I feel almost guilty checking for a post as I know you are doing so much. I learned from the last surgery that no posting usually means you are busy with Ivy Joy...so that is good news!!! Our family continues to hold Ivy in our hearts and we continue to pray for her strength to return and for her lungs to be less wet!! Tell those nurses that if they had gone through what Ivy has gone through..they would be giving hairy eyeballs too...although I think they probably know that!!
Love and hugs
Kathie

Kathy said...

Thank you so much for the update. I have been checking several times a day to see how Ivy is doing. She is an amazing child. Will continue to pray for her healing and strength, plus your and the rest of the family's.
Would love to be a friend of yours on FB.

Wife of the Prez said...

Wonderful update Mary!!! Totally worth waiting for, and btw you don't need to apologize! We know your goal is taking care of and advocating for your baby girl!!! And taking care of yourself too so you can keep taking care of her!

The Oswalds said...

Great News! Thank you for keeping us all updated! Continuing prayers!

Shauna

Laine said...

Oh I love the title of this post! Ivy Joy We DO Love you!!!!! :)

So thankful to hear she is out of ICU! That is BIG NEWS!

We will keep praying for her to be strengthened! After our little Kevin had his surgery (and it wasn't near the extent of sweet Ivy's) it took him a good 3 weeks to walk again. Not only was he weak, but he was fearful too, I think. So we will step up the prayers for Miss Ivy and her strength!

So so thankful for God's mercy and healing in her life!!!!!

Kristy said...

What great news to start the day with!!! We continue to pray and hope for even more miracles for little stink eye princess!!

Jenny said...

Hi! Our dear friend, Kimberley Byrd, asked for prayer for your Ivy on fb and we've been praying since! We're missionaries in Mexico and have 4 kids (8, 7, 5, 2). They have all been crazy praying for "Baby Ivy and her mama"!! I had mentioned how hard all this was on you, now that your hubby had to go back! :) Even our 2 year old little girl has been praying for "Baby Ivy and for her heart to get all better." And she has translated your request as "and for her mama to get all better, too!" Too sweet- they have prayed all weekend long, so I just had to share that your little girl was being lifted up mightily down here in Oaxaca!! May God continue to receive the glory and honor for His mighty healing of this brave little Ivy!! We all think both your girls look just like little china dolls!! So beautiful!! :) :)

Betty said...

Awesome news! I love the "stink eye" part! She's obviously had it with everyone poking at her.
What a trooper she is. I can't wait to see her blossom in the days and weeks ahead and for you both to be home with your family and enjoying the everyday miracles of life.

Karen from New Hampshire said...

So glad to hear all the great news, Mary! Feel bad I couldn't get there to see you on Saturday, but will try to work a visit in before leaving on vacation Saturday. Did you say "wicked fresh"??? Wicked is SUCH a New England term...haha! Love that you used it!

Hugs

Anonymous said...

Mary - 3 open hearts in 6mos says it all. I know you know the answer to this but do you know how much that has to take out of her? My dad had OHS and he said it took him about a year to say he felt the same strength, etc as he did before the operation. Ivy is so strong! Such a fighter. I'm praying for lots of calories to go to those little legs and lots of gunk to get out of those lungs. I fell to my knees in a prayer of thanks to see the post with her eyes open! Joy!!! Still thinking of you and praying for Ivy's quick, complete healing every day. Love sent your way.....

Beth

Kim said...

Absolutely wonderful!!! As always God is good!

Anonymous said...

I stumbled across your blog looking for adoption stories as my husband and I are just beginning our adoption journey - and I was hooked from the very first look!

I am so glad to hear Ivy is doing well, she is never far from my mind and always in my prayers!

Bless you all and please God, may Ivy have a long and happy life.

Love from Canada!

Anonymous said...

Mary, thanks for the update --got me a wee bit worried not to know how she was since she woke up -but i understand - Am continuing in prayer now for those wet lungs to dry up a bit! -out of ICU!! and doing so well !! To God be the Glory!! and those wonderful doctors at BCH!! Keep eating Ivy --you need strength -moms love will do all she can! Blessings,Cathy in Illinois!!!

Anonymous said...

Mary, So happy to hear Ivy Joy is out of the ICU. What wonderful news to wake up to.

We will continue to pray for her recovery.

Blessings from CT
Caroline

Christina said...

She is simply a miracle!!!! I'll continue praying for healing for your sweet girl.

Shay Ankerich said...

SO thankful and praying for both of you!!! Blessings and love!

Anonymous said...

so thankful...

Kristi said...

Praying in PA! Saw pics on FB; she is so beautiful, even her stink eye look is adorable!

Karin said...

Oh my goodness, that is incredible!!! I expected her to be in CICU for awhile yet. Hooray!!! Eat, girl, eat!! :)

Annette Duty said...

So very glad for all the good news. I can only imagine her little body needs some rest and recuperation after all she's been through. Looking forward to her coming home soon!!!

 
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