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Monday, November 12, 2012

Not home yet

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I have gone round and round on how I would share our day


I face planted right onto my laptop, I am so tired! I woke up with my head on the keyboard. It was a hard day, a long day, a big day.
 The doctors were absolutely shocked by todays echo, as were we!
They pulled me aside to talk alone. The sadness in their eyes was enough to make the room feel like an icebox. Dr Maarx, our cardiologist was so kind and so wholeheartedly disappointed. 
Later this evening Dr. Baird came to our room. He held Ivy's hand and rubbed her leg and told her he promised to make her better.


 The echo revealed that Ivy's right side of her heart is not working properly. The tricuspid has severe regurgitation. This is a secondary problem, meaning something else is causing it. Ivy will have a heart Cath first thing tomorrow morning (at 7am).



If it is the right coronary artery again, they can address it in the cath lab. If it is something else... They will need to do open heart again. We pray it is something that can be addressed in the cath lab. And we pray her little body can handle this. She has been through so much in such a short time. 
 I am holding up fine, my heart just crumbles for her. Imagining what she has endured and how we have just finally started to see our smiley girl emerge from the suffering and here we go again.


 I was weary and overwhelmed as I took in the information. Shaken by what seems like continuous suffering and heartache for this precious little peanut. But God is faithful and His timing is perfect. He knows what He is doing and He will perfect us, strengthen us, and make us whole~ with nothing lacking!



Remembering God's Promise tonight~
Be confident of this very thing, that He who has begun a good work in you will complete it. Philippians 1:6


 Our baby needs her team on board again! 
Pray fervently
Rejoice in His promise
Repeat!




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71 comments:

April Carpenter said...

Praying for sweet Ivy. God give Her strength. Prayers from Alabama.

Lori said...

I opened your blog with such anticipation... feeling the incredible let down with you, sweet friend. Would like to go have a gut wrenching cry on Ivy's behalf. Praying the floodgates of heaven will open and pour such blessings on you, you can't contain them! Praying now and will not stop until we hear of His faithful answers.... Hugs tonight... Lori McCary

Anonymous said...

Praying for sweet Ivy, and strength and energy for you! As a nurse, I'm praying for the nurses and physicians that are taking care of you guys!

Lauren
Birmingham, AL

Sister Kim said...

I will pray for her all day tomorrow and I will say special prayers tonight...

Anonymous said...

Once again, faith. You and she have shared and endured so much. She is a warrior princess. I remember the earlier posts where you were trying to decide to show photo's of her, and now each and every time, her victories are documented so bravely. Your words and thoughts and heavy heart are on my mind each night and first thing in the morning. The world is thinking and praying for you and your sweet baby girl. You are the best mother this little warrior princess could ever hope for - you are a true and vivid example of a Christian mother. Everyone in my community will be praying until you and sweet Ivy are safely home.

JulieM said...

Praying for your sweet girl! Your faith and testimony is a true statement of his grace and strength. You are truly an inspiration to many including me!
Blessings
Julie

Yvette said...

Oh Hugs - I have no words except our unending prayers for your sweet baby and the love you have shown her - because that is why she smiles

Di said...

For Ivy's heart to be healed finally - in the cath lab.....my hope for today....

Sandra Church said...

Praying continuously for sweet Ivy, for the doctors, for you, and for your family.

Kristyn said...

Praying each and every day for this sweet girl!<3

Y said...

The Lord has promis"d good to me,
His word my hope secures;
He will my sheild and portion be,
As long as life endures.

thinking about you all

a message from
Scotland.

Anonymous said...

We are offering continues prayers for your precious little girl and the family. Special prayers for today.

Anonymous said...

Oh my gosh... what sad news. Praying so hard for you, Ivy and her medical team and hoping for the best!

Lori in Texas

Fannie said...

Oh Mary, I am so sorry that little Ivy has another fight ahead! No child should have to go through all she has gone through... She even had the tube out today huh? At least she has been gaining some strength so that she can keep on fighting. Praise God for that!

I will pray that God works through the doctors and allows them to determine what is causing the regurgitation in the cath lab. The Lord will take care of that precious baby girl!!

Lots of thoughts and prayers for Little Ivy Joy and her family this morning!

Preppy Pink Crocodile said...

Oh I am so sorry that she has this extra big step to take now. But she has come so far and she seems to be in the hands of the best of the best. Praying for a simply fix and quick healing

Suzanne said...

Praying now in Virginia for sweet Ivy and all those that God has placed in her path to care for her! Sending heart hugs to you, Ivy and the rest of your precious family. Suzanne

Sue Mom of Two said...

I'm SO sad for you and your family, and especially for sweet little Ivy. PRAYING big time that this can be fixed quickly and easily. God is the great physician, and HE can fix this. Stay strong!

Anonymous said...

praying for sweet Ivy and a fix through the heart cath.

connie said...

Oh Mary! I'm going to my knees right now! God is faithful!!!!

FullPlateMom said...

Oh Ivy joy!!! We're praying big prayers for you from your homeland.

Laine said...

Praying right now!!!

Heather Austin said...

We continue to pray for Ivy...and you! Ivy's picture is on our kitchen table so she is never far from our thoughts. My 8 year old wore her Joy shirt to school yesterday and was telling all her friends about "Ivy Joy, this little girl we pray for that my mom met on her blog.". :)

Holly said...

Praying fervently for precious Ivy in the cath lab. Praying that this is her final procedure!! You are the strongest person ever Mary! Please hang in there.
Holly

Carmen said...

Oh Mary, I pray that when the doctors go in there they will be scratching their heads because they will find nothing wrong with her right side - that it will be miraculously healed. Such a long road but keep your eyes fixed on the hope you have.

Sending hugs

Fran├žoise said...

Praying for sweet baby.
Fran├žoise from France

Leah Mei said...

Praying hard for more miracles.

sierrasmom said...

I opened the page so happy to see such smiles! Mary...I KNOW she can be completely healed..praying for healing to occur during the cath..hugs to you
Kathie

Jboo said...

Praying for sweet Ivy in the cath lab today and for you and your entire family.

janet

Luciana said...

Praying that it's the right cor. artery again and may be fixed via cath. Sigh. She's in now. I hope you're able to update soon. Praying.
xo

Jennifer P said...

Hard day. I'm sorry, Mary. Ivy is so blessed to have a mother like you who bears her pain and is there for her every step of the way. Praying for good cath lab results. Hopefully something that is better addressed now while you are still in Boston, the best! Praying for all of you.

Paula said...

Prayers, hugs, love and more prayers......

Maggie said...

Praying for strength for Ivy and wisdom and skill for her doctors.

Paige said...

My heart sank seeing your title but my prayers will go to the one who can do this for our precious Ivy!!! Hugs from tn!!!

Firefly Hill said...

The first picture made me so happy! Then to read what you all are facing...it is just incredible. I am so sorry.

jennifer said...

Praying in Louisiana. Praying that you have good news from the Cath lab this morning.

KeithJonesBlog said...

Oh, Lord! Mercy for this sweet little girl and this family that has so faithfully endured. Let your kindness and love rain down. Father, heal this precious gift that you've given to all of us.

alexa said...

I was so happy for you the other day and now, I'm thinking about your precious little girl and all she has endured until now. She is so brave.
I will pray for her, for your family every day until your sweet Ivy and you are home.
Hugs from France
Alexa and family

Diane said...

No words. Just lots of prayers for your precious girl.

Rachel said...

Continuing to pray! When we were going through so much with our Lily last winter, God continuously spoke to me and showed me things through His Word.

Beautiful, in Ecc. 3:11 means fit, in harmony with the whole work of God. It also means that, all things considered, it could not have been done better.

I feel like we’re in the fight of our lives with Lily, but it’s a beautiful fight…it’s in God’s perfect harmony and that means there is no better way.

I think you are also in a beautiful fight for your precious Ivy, but be encouraged that with God there is no better way! (I know your faith is strong, just wanted to send some encouragement your way!)

Blessings!
Rachel

likeschocolate said...

Praying for ivy!

J Tolman said...

Oh, Mary. I am so sorry. I wish I could just hop on a plane and be there to hold your hand as you wait. I hope you can feel all of our hugs and prayers. ~ Jan

holly:) said...

Praying for Ivy and you as you continue to walk through this healing time for your girl. I had to check the date of this post because I was hoping I'd happened on an older post:(

I'm so very sorry for this news but so grateful that the doctors found this problem before you went home.

God Bless you,keep you safe, and give you His peace,
hollym.:)

John & Michelle said...

TEAM IVY! We will continue to pray in Athens, AL and believe GODS timing is always perfect! praying for renewd strength and HOPE for you all!

Anonymous said...

I am so sorry you and Ivy have to go through another procedure. I pray it was something minor that is already fixed in the cath lab. I pray that she is happy, healthy, and pain free. She deserves this and so much more...she is lucky to have a loving family with so much faith.
Love, Prayers, and Hugs from Ohio
Bridget

maggie k said...

Mary - So sorry about the news. Still praying for you and Ivy in CT. Love Maggie K

Elaine said...

Praying for His wisdom for the Dr.'s, strength for you and that you will feel His loving arms and for complete healing IN the cath lab for sweet Ivy Joy. Sending my hugs too...from one heart mom to another:)

Wendy said...

Praying hard for sweet Ivy & her wonderful Mommy! Hugs from NOLA, xoxo

Grandma Shelley said...

With excitement, I opened your blog post. Now....I feel so bad for Ivy. I will lift you, your family, the doctors, nurses, and of course, Miss Ivy Joy in prayer today. Big hugs..

DiJo said...

Praying, Praying, Praying... And TRUSTING that God will continue to hold you in the palm of HIs hand.. Remember that photo I sent you... Jesus is there.. Directing and leading her wonderful team in the Cath Lab.... She is not alone.. And, you are not alone.. We, Team Ivy, are privileged to stand in the gap...

"Do Not Be Afraid..."

Love,
Diana

Kristi said...

Oh, how I hate to hear this for the both of you. Will pray that the problem is identified and corrected via cath today, and that this is Ivy's last health hurdle. That she will finally be able to grow big and strong. ...How amazing that even with the trouble emerging in the right side of her heart, she has been able to smile!!!! What a special, beautiful, sweet baby girl!!!! And, thanks be to God for her special dedicated Mommy too!!!!

Stephanie T said...

Your post brought tears to my eyes. I will praying all morning for precious Ivy, she is a fighter. It is a blessing that you were still in Boston when they found this, you seem to have amazing surgeons who truly care about Ivy. May God guide the surgeons as they fix Ivy today. Your prayer warriors will all be at work today.

Anonymous said...

Dear Heavenly Father, we have never met this family, but we are family through You. We praise you for bringing them together with their beautiful Ivy Joy and we know you have perfect and marvelous plans for them. Lord, be with this family, please hold them in your hands and let them feel your love and care. Guide the doctors and staff. Touch little Ivy's body with your healing power. We pray this in Jesus' name - Amen

Anonymous said...

Praying in Georgia.

Wendy said...

Mary, I just saw this and am so saddened to hear this news and to know that sweet Ivy will have more procedures to deal with. Praying for your strength, for the doctor's to be able to fix these issues, and for Ivy's health and healing. Sending our love!
The Ditmars

Anonymous said...

Praying, praying for precious Ivy and hopeful that all can be accomplished right in the cath lab. I have been following your story and praying all along for your sweet little girl.
~Holly (R. Island)

Holly Girgin said...

Sweet Mary - please know there are many of us here that are praying for Ivy, for you and the family and today for her medical team and situation before you.

Word of God speak
Would You pour down like rain
Washing my eyes to see
Your majesty
To be still and know
That You're in this place
Please let me stay and rest
In Your holiness
Word of God speak

Praying in Missouri. In Jesus' name, Amen.

my3 kids said...

We are here Mary...we have not stopped praying for your beautiful baby girl. Prayers heading your way from snowy Canada!!!

Janice and family xoxo

Susan said...

Oh sweet friend, my heart breaks for you and sweet Ivy!!! Praying, praying, praying!!!!

Let us hold fast to the confession of our hope without wavering, for He who promised is faithful. Hebrews 10:23

Anonymous said...

Oh Mary. I'm praying so hard for Ivy. Pray, pray, pray. Please God, heal this precious baby.

Beth

Mary Beth said...

I put my Joy shirt on this morning before I read this. I'm so sorry that sweet Ivy must endure more procedures. Praying that God will pave the way for her healing and your own strength.

Kristiana said...

Praying!

maria said...

Praying!!!

Anonymous said...

airfati 15Continuing to pray for Ivy! love the pictures of her !! thanx for sharing a part of her with us!! Blessings,Cathy in Illinois!!

Kim said...

Prayers for all!

JB said...

Will do. Prayers from Columbus, Ohiol

Erin said...

Praying for your precious Ivy.

Jessica said...

Oh my heart breaks hearing your news. Will keep praying for God to keep his healing hands on Ivy and that he will guide the doctors.

Keisha said...

:( Praying. I'm sorry for the news.. God is still in control & has brought her so far...
I'm sure I don't have to tell you that..
I love the way you ended this post..
Pray fervently
Rejoice in His Promise
Repeat...

Hang in there! You guys have many that are praying!!

Faith Buhager said...

With heavy heart of this news, will be praying that God makes all things new & what man says is impossible, God says is possible!

Lynne said...

Prayers for sweet Ivy and the Sammons family coming from the Warren family.

Penny said...

More prayers for you. So sorry to read this today, but praying this will be the solution to the next stage of a long and healthy life for her.

 
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